At the tender age of 11, Liam Pretorius from Pretoria East in Johannesburg found his vibrant life taking a drastic turn. Once known for his robust health and lively demeanour, Liam, affectionately dubbed “my Boerboel puppy” by his mother Amelia Pretorius, enjoyed an idyllic existence on a farm. There, he tended to his two beloved horses with care, diligently grooming them and maintaining their stables.
“I was always thinking I am so blessed to have such a healthy and happy child,” Amelia told the Pretoria Rekord.
Pictured above: 11-year-old Liam Pretorius (Image Credits: Pretoria Rekord)
However, in 2022, Liam’s world was shaken by the onset of symptoms signalling a grave illness, ultimately diagnosed as autoimmune ulcerative colitis. This condition, characterised by abdominal discomfort, diarrhoea, and presence of blood and mucus in the stool, marked the beginning of a challenging journey for young Liam.
“This disease is very rare, especially in children and at his age,” said Pretorius.
Adding to the complexity of his condition, Liam was also diagnosed with primary sclerosing cholangitis, a condition where the bile ducts within and outside the liver undergo inflammation and scarring, leading to obstruction and damage. Facing the dire consequences of liver dysfunction, Liam’s only hope for survival lies in a liver transplant.
“It is very heartbreaking to see my once very active child being bedridden and having to sleep most of the time,” said Pretorius.
Pictured above: Liam and his mum Amelia Pretorius
Once an avid horse rider and cycling enthusiast, Liam was forced to relinquish these passions as his health rapidly deteriorated, succumbing to complications such as rheumatoid arthritis, autoimmune hepatitis, and jaundice.
The toll on Liam’s academic and social life has been profound. With just four days spent in school last February, the majority of his time is now dedicated to medical care at the Donald Gordon Medical Centre’s transplant unit and a clinic in Midrand.
Despite the adversity, Liam persists in his studies, maintaining a commendable academic performance in Grade 7. Yet, his daily existence is marred by relentless pain from rheumatoid arthritis and widespread inflammation.
“It is so difficult to see someone so young being so ill,” said Pretorius.
The Pretorius family’s lifestyle has been upended by Liam’s illness, necessitating significant adjustments. Liam, now a vegetarian, adheres to a strict diet of lactose-free dairy and gluten-free fare to manage his condition.
Pictured above: Liam enjoying his time at the horse stables
Moreover, stringent precautions are in place to protect Liam from airborne illnesses, mandating the use of masks and hand sanitizers due to his compromised immunity.
“We are trying everything just to cope and to get by until a liver becomes available,” said Pretorius.
For Liam and his family, the agonising wait for a suitable liver donor commenced long ago, initially projected to span a decade. However, due to the rapid progression of his illness, this timeline has been drastically shortened to 12 to 18 months.
“His condition has deteriorated faster than expected.” We tried everything to slow the illness down. At present he is on biologicals as a treatment as because of his liver condition, he is unable to even take a pain pill.” said Pretorius.
The financial burden of Liam’s ongoing treatment and eventual transplant looms large, with estimates from the Donald Gordon Transplant Unit indicating a requirement of at least R800,000. In an effort to alleviate this strain, Liam’s mother has launched a BackaBuddy campaign to rally support for her son’s medical journey.
Pictured above: Liam at the hospital for his treatment
“We’ve only raised R3 500 so far,” said Pretorius. She has a full-time job and it has become a challenge to make ends meet.
“I want to do everything I can to ensure my son has the best options available so he lives his best life for as long as possible,” said Pretorius.
Ever since Liam started his biological treatment in February, his immune system has been weakened, preventing him from attending classes at his usual school centre.
“Most of the time, he only has his computer tablet as a companion as he cannot be exposed to germs,” explained Pretorius.
To help her son fight against this battle and alleviate their financial burden, Amelia recently started a BackaBuddy crowdfunding campaign.
“I will be so grateful to anyone who would be able to help me help my son use the one option, a liver transplant, for his incurable disease,” said Pretorius.
Support Liam’s campaign here: https://www.backabuddy.co.za/campaign/liam-needs-a-liver
SOURCE: PRETORIA REKORD