In July of last year, 32-year-old Timothy Bentley, a mechanical engineer from Cape Town, found his life suddenly upended. Following what seemed to be a common viral infection, Tim’s health began to unravel in ways he could never have imagined. His diagnosis of Myalgic Encephalomyelitis (ME/CFS), also known as Chronic Fatigue Syndrome, has led to a downward spiral in his health, leaving him bed-bound and dependent on loved ones for even the simplest tasks.
Pictured above: 32-year-old Timothy Bentley
Tim’s journey to a diagnosis was a lengthy one; it took over eight months from his initial infection to get any real answers. During that time, he endured the deterioration of his physical and mental capacities. Once an avid mountain biker, racer, and BMX dirt jumper who loved going to live concerts and the beach, Tim has now lost access to the activities and lifestyle that once defined him. “It’s been extremely tough on me,” Tim shares. “I was incredibly active before I got sick. Now, it’s so isolating, and every test builds my hopes, only for them to be dashed when the results come back.”
For Tim, every day is a challenge. The debilitating fatigue and body aches prevent even basic movement. He experiences severe light and noise sensitivity, vertigo, dizziness, and cognitive impairments that make screen time or even looking at his phone for more than a few minutes nearly impossible. Adding to the strain, Tim’s body no longer tolerates any physical or mental exertion, temperature changes, or bright lights, which worsen his symptoms. The condition is thought to be linked to a viral trigger, yet the exact biological cause of ME/CFS remains unknown – akin to the mystery surrounding long COVID. Medical experts theorize it could stem from cellular energy production issues, immune system reactions, or even brain stem damage.
Pictured above: Tim in his mountain biking element
Tim’s partner, Frankie Du Toit (27), has become his steadfast support, taking on all household responsibilities, from cooking and cleaning to managing finances. “Frankie’s been my rock,” Tim says. “She’s taken over everything, been my emotional support, and helps with daily tasks I can’t do myself, like showering.” Tim’s parents, James and Sue Bentley, have also had to adjust their lives significantly. They come by daily to prepare meals, handle the cleaning, and take him to all his medical appointments, all while managing the financial burden of ongoing treatments. “It’s been overwhelming,” Tim reflects. “This whole experience has placed a tremendous financial and emotional strain on my parents. They’ve spent nearly all their savings on my medical care.”
The road to recovery has been paved with medical tests and expenses. Currently, Tim is awaiting the results of a full brain and spine MRI to rule out conditions that mimic ME/CFS, such as cervical spinal stenosis. Additionally, he’s waiting for blood test results to check for heavy metal allergies to titanium, as he has plates and screws in his foot from past injuries. If these tests show no further complications, the focus will shift to managing his symptoms.
Pictured above: Tim Bentley
Amidst this uphill battle, Tim remains hopeful, inspired by stories of others who have recovered from ME/CFS. “The thought that one day I might be able to ride again and do the things I love is what keeps me going,” he says. His gratitude for the outpouring of support from 136 donors on his BackaBuddy campaign, which has raised over R163,000 so far, is profound. “Thank you so much to everyone who has donated, no matter how big or small,” Tim says. “Thank you to my wonderful friends, especially from the mountain biking community, who have donated and shared my story. And thank you to the kind people who don’t even know me but have still donated. I wish I could personally thank each and every one of you!”
As Tim continues his journey, the generosity of supporters has been a vital source of strength and hope. “It’s been absolutely overwhelming and has taken a huge financial burden off my parents. Knowing that I’m not forgotten during this incredibly challenging time means the world to me,” TIm says. The support allows him to focus on his next steps toward recovery, holding on to the hope that one day he will be back on his bike, conquering new trails, and living the life he once loved.