by Sanusha Shamdutt | Aug 6, 2024 | Campaign, Featured
Nicela Naudé, affectionately known as Nikki, is a 10-year-old, grade 4 student at Riverside College in Cape Town. She entered the world under the shadow of abandonment. Born from an unwanted pregnancy 2014, her biological mother chose not to see her or even learn whether she had given birth to a boy or girl. Left alone at Groote Schuur Hospital state hospital, Nikki faced a bleak future, compounded by her diagnosis of Klippel-Trenaunay-Weber Syndrome. This rare condition, affecting just 1 in 100,000 people, caused severe lymphatic and vascular malformations on the left side of her body. Tumours weighing up to 1 kg grew on her chest, and her left arm and hand were deformed. Her life expectancy was heartbreakingly estimated to be only four months.
Pictured above: 10-year-old Nicela Naudé
But Nikki’s story was destined for a miraculous turn. Jacques (51) and Madelaine Naudé (52) , two dedicated officers in the South African Police Service in Elsies River and Bothasig respectively, learned about Nikki through a mutual friend, 60-year-old Karin Noonan. Without hesitation, they began the adoption process, driven by a profound desire to provide her with a loving home. They didn’t have much, but they promised to share whatever they had with Nikki. They envisioned a life filled with siblings, pets, princess parties, and endless love.
Pictured above: Nicela with mum, Madelaine Naudé, and dad, Jacques Naudé
‘It was heartbreaking to see a fragile little girl lay there with big eyes and knowing she has nothing in life. A mother who didn’t want her and a life threatening disease. She was beautiful and we loved her instantly. When we heard that no-one was prepared to adopt her because of her short life expectancy we decided that we can give her a chance in life with a loving family for as long as she has to live. We had nothing to lose but so much to gain by loving this precious child that God had gifted us’ says mum Madelaine
On March 16, 2024, Nicela celebrated her tenth birthday. She is now a beautiful, spontaneous, and happy little girl who adores dogs and make-up. Despite undergoing eight complex debulking surgeries, which aim to improve her quality of life, her condition remains incurable. The surgeries have become increasingly dangerous as the affected tissue has infiltrated her muscles and nerves. Future surgeries risk leaving her without the use of her hand.
‘Nicela is a vibrant, beautiful little girl who is raised with buckets full of love and confidence. She is top of her class at school and loves her school concerts where she has been leading lady for the past 2 years. She is loving and kind and shows empathy for others. She always wants to help people, even from a very young age. She also intends on opening an animal shelter when she is older’ dad Jacques tells us
Pictured above: Nicela Naudé
However, hope has emerged. Nicela has been referred to vascular surgeon, Dr Laura Redman, at the Christiaan Barnard Memorial Hospital, who will take over her treatment from Professor Frank Graewe. A promising procedure called sclerotherapy will be attempted. This procedure involves injecting 90% alcohol into the affected areas to shrink the tumours, which have now started forming bones. She has also been prescribed a chemotherapy drug, Sirolimus, to aid in the treatment. Her arm and hand are heavy, causing her lower arm to bend and appear shorter than her right arm. Nicela will need to undergo this procedure for the next six months, costing R71,000 per month, with medication adding another R4,000 per month. Unfortunately, their medical aid does not recognize her condition, covering only a fraction of the expenses.
‘Nicela is flourishing under the care of Dr Laura Redman. She is currently undergoing sclerotherapy once a month under anaesthesia as it is a very painful procedure with 90% alcohol injections into the tumours to help shrink and hopefully slow the growing process. It is all still very traumatising with all the blood tests, x-rays, several debulking surgeries and now the sclerotherapy. A total of 21 surgeries.’ explains Madelaine
Despite the financial strain, Jacques and Madelaine are determined to give Nikki the best life possible. They have taken out a second bond on their home to cover the costs, with their medical aid only covering R12,000 out of R140,000 in medical expenses. Yet, the results are encouraging. Nicela has already undergone two procedures and shown significant improvement. She feels beautiful and is excited about the possibility of looking “normal” one day. She has even vowed not to cry anymore when blood is drawn, understanding it is part of her journey to getting better.
Pictured above: Nicela with her brother Rick Naudé
‘Nicela’s sclerotherapy is a very costly procedure and her medical aid only covers a fraction of the cost. We have tried to get gap cover but unfortunately they do not cover pre-existing conditions. A procedure is R71 000 at a time. Nicela is also prescribed chemo medication to help keep the tumours at bay at a monthly cost of R3900 which the medical aid does not cover because it does not fall under their prescribed medical benefits. The donation that we receive will go towards all of Nicela’s medical expenses’ says Jacques
Now, they need your help. This courageous family should not have to halt treatment due to financial constraints. To help alleviate the financial strain that they are facing the family has started a BackaBuddy crowdfunding campaign where they have already raised over R100 000 with the help of 190 incredible donors.
‘To the donors, you are absolutely amazing. Showing that there is indeed still kindness and empathy in this world. Nicela knows about your donations and always says “that’s so nice of them, please say thank you for me.” You are improving the quality of life for a little girl you have no relation to and that takes a special kind of person. We are endlessly grateful for your generosity’ the couple explains
by Sanusha Shamdutt | Jul 30, 2024 | Campaign, Featured
In November 2023, 31-year-old Chané Coetzee received a life-altering diagnosis: Lymphoepithelial Carcinoma of the Lung. This rare form of cancer has only been diagnosed twice before in South Africa, as far as her doctors can confirm. The diagnosis has turned Chané’s world upside down, and her journey has been arduous.
Chané has bravely faced the physical and emotional challenges of her diagnosis, but the financial strain has been equally daunting. Her extensive hospital stays and treatments have led to mounting medical bills. Yet, in this dark time, the kindness and support from her community have shone brightly. Through the generosity of many, over R59 000 has been raised through Chané’s BackaBuddy crowdfunding campaign, easing some of her financial burdens.
What has truly left Chané in awe is a new community effort that speaks volumes about the power of unity and compassion. “Some wonderful members of the community have come together to arrange a fundraiser drive for me in the form of an event called The Breath of Hope Fest which will be taking place on the 24th of August 2024 at the KHOSA Sports Club in Krugersdorp. We will have live musos, a market, kiddies entertainment and fun for the whole family!” Chané told Good Things Guy.
The Breath of Hope Fest promises a joyous occasion for all ages, filled with music, laughter, and community spirit. This meaningful event supports cancer treatment funding, with every ticket sold directly contributing to Chané’s medical expenses. By attending, you transform a day of fun into a powerful force for good.
Chané continues to share updates about her cancer battle on her Facebook page, where supporters can follow along, offer words of encouragement, and stay informed about her journey.
SOURCE & IMAGE CREDITS: Good Things Guy
by Sanusha Shamdutt | Jul 30, 2024 | Campaign, Featured
When a plea for help is made, people respond with kindness and generosity, ensuring no one is left alone. This sense of community has never been more apparent than in the touching story of baby Hayden.
Hayden was born prematurely at 32 weeks, and his arrival was accompanied by numerous difficulties.
His mother, Jess, went into early labour, and despite the hospital’s best efforts to postpone his birth and administer steroids to help his lungs develop, Hayden had to be delivered via emergency C-section at midnight on Sunday 21 July. Although born early, Hayden received immediate and hopeful care at the Neonatal Intensive Care Unit (NICU) at Wilgeheuwel Hospital, Roodepoort.
Although Hayden was born healthy, his premature birth required specialised care, presenting an enormous challenge for his parents, Jess and Dylan.
Their health insurance only covered R75,000, which was barely enough for a two-night stay in the NICU. The hospital, unfortunately, could not accept a payment plan and required the funds upfront. Transferring Hayden to a government hospital was risky and uncertain, as no local facilities had the necessary space or equipment.
While Jess dealt with her own health issues, including two blood transfusions and medication to prevent blood clots, the urgency to secure the best care for Hayden intensified. The family’s immediate goal was to keep Hayden in Wilgeheuwel for at least two weeks, hoping to find a longer-term solution by then. The cost? A staggering R570,000.
This is where the community’s magic came into play. South Africans from all walks of life came together for the cause. In just five days, they raised over R200 000 of the R570 000 goal through the family’s BackaBuddy campaign.
This outpouring of generosity beautifully illustrates the “it takes a village” concept. Every donation, prayer, and share of Hayden’s story has been a lifeline, bringing his family closer to their goal and giving Hayden the best chance at a healthy future.
Jess and Dylan are deeply thankful for the support they have received so far. “Each contribution, no matter the size, is a step towards ensuring Hayden’s health and future. We are so thankful to each and every person who has donated, said a prayer, or shared his story. We remain hopeful and encouraged by the kindness shown by so many” the couple told Good Things Guy.
SOURCE: Good Things Guy
by Sanusha Shamdutt | Jul 18, 2024 | Campaign, Featured
Healthcare Workers 4 Palestine SA (HCW4PSA) has teamed up with Gift of the Givers (GoTG) to present a comedy night in support of their Ubuntu Bucket Drive campaign today on Mandela Day.
This comedy show, starring Riaad Moosa and Zayn Sibda (Prof Zee), will take place today, July 18 from 7pm to 9.30pm at the Venue on Par in Wynberg, officially launching the campaign.
Dr. Samah El Boraei, HCW4PSA Western Cape Events Head, shared that the Ubuntu Bucket Drive aims to provide monthly care packages to local hospitals in South Africa. These packages are meant for malnourished patients who are discharged from the hospital and often have very few supplies at home after a long hospital stay.
“We are inspired by the sumud (steadfastness) of the Palestinian people during this genocide and recall our own ubuntu spirit under the brutal apartheid regime. We also remember Madiba this Mandela Day, who taught us that tackling poverty is not a gesture of charity, it is an act of justice and as South Africans we will never truly be free while there is so much poverty and inequality in our communities.” El Boraei told IOL
The Ubuntu Buckets will contain nutritious non-perishable foods and toiletries, enough to support a family of four for a month. Nazreena Hassim, another Western Cape Events Head, mentioned that the goal is for this initiative to become an ongoing long-term project with GoTG. Hassim added that distribution is set to start in August, beginning with regional hospitals in the Western Cape.
GoTG will oversee the packaging and delivery of the Ubuntu Buckets to the specified hospitals.
In February, these organisations collaborated on a campaign in remembrance of over 13,000 Palestinian children killed in Gaza at that time by the Israel Defense Forces. This campaign raised over R1.7 million and allowed the purchase of 13,000 pairs of school shoes, which were distributed to children in need throughout South Africa.
Tickets for the comedy night can be purchased for R260 on Quicket (Mandela Day Comedy Evening). Contributions to the Ubuntu Bucket Drive can be made through their BackaBuddy crowdfunding campaign where they have already raised over R9300 with the help of 7 incredible donors.
While the Ubuntu buckets are valued at R550, donations of any amount are welcome through BackaBuddy.
SOURCE: IOL
by Sanusha Shamdutt | Jul 15, 2024 | Campaign, Featured
On May 9th, 2024, the lives of the Lubbe family from Gonubie, East London, changed forever with the arrival of their beautiful baby girl Lorelai Mathilda (meaning warrior). They eagerly anticipated meeting their healthy baby girl, but little did they know that her first breath would soon be supported by the hum of medical machines. As new parents, they couldn’t yet grasp the challenging road that lay ahead with their warrior daughter.
Pictured above: 2-month-old Lorelai Mathilda Lubbe (Warrior)
Lorelai has Pulmonary Atresia, a rare heart defect that affects 1 in 10,000 babies. This condition occurs when the pulmonary valve doesn’t develop, preventing blood from flowing from the heart to the lungs to get oxygen. Additionally, Lorelai has a Ventricular Septal Defect (VSD), meaning there’s a hole in the wall between her heart’s lower chambers. The prognosis for babies with Pulmonary Atresia is daunting, with an 80% mortality rate by their first birthday. The diagnosis was never picked up in utero, so when Lorelai was born via emergency C-section, it was only then that the doctors and her parents, mum Dominique Lubbe (21) and dad Morne Lubbe (27) found out.
“We were absolutely shattered, it was so unexpected. It felt like everything was going wrong. The day before we were so excited to meet our first baby after a long pregnancy. Then I had an emergency c-section from a failed induction and then the doctors came in and told us they had bad news. We went cold all over. I couldn’t breathe. The days that followed were so difficult, not going home with your baby, questioning if it is your fault and the doctors saying there is nothing I could have done as a mom to prevent this, that it is just a bad draw of cards. It just gets harder and harder visiting and seeing our baby in hospital, her not knowing the beautiful room we’ve made for her at home. Her bull terrier sister is waiting at home. Our family wanted to meet her. We’d do anything to have her home with us.” says an emotional Dominique
Pictured above: Lorelai with her mum, Dominique Lubbe
Lorelai’s congenital heart defect is terminal if not addressed, as her underdeveloped pulmonary arteries prevent normal breathing and result in very low oxygen levels in her blood. Lorelai and Dominique were airlifted from East London to Sunninghill Hospital in Rivonia Sandton, Johannesburg, where the Maboneng Heart and Lung Institute specialises in complex open-heart surgeries for babies. The institute also has the advanced CT Echo scan resources necessary for detailed diagnosis.
Lorelai requires a complex open-heart surgery for a full heart repair, and she will need multiple surgeries throughout her life to replace the conduits (artificial arteries) as she grows. Her family urgently travelled to Johannesburg, carrying many prayers in their hearts, for the expertise at Sunninghill Hospital. Despite their efforts to prepare for a healthy baby, Lorelai’s parents now face overwhelming medical expenses as Sunninghill Hospital is out of their medical aid network, making the additional costs and co-payments beyond their means.
“Lorelai is currently fighting an infection from her central line (IV). They have to give her medication though that line to keep her patent ductus open artificially. But the medication has severe side effects including bone pain, and the other lasix medication causes hearing loss so she faces many challenges everyday. But the sooner she can get her operation the sooner they can get her off the lasix and prostin medication. She is just fighting an infection again.” explains Dominique
Lorelai being the warrior that she is has already fought so hard to be here every day. She deserves the chance to live a full and healthy life. Currently, she rests in her little glass box at Sunninghill hospital, awaiting her surgery.
Pictured above: Little Lorelai at the Sunninghill Hospital
“Lorelai is defying all odds everyday. They said she would never pick up weight and yet she has, on a daily basis she fights to be with us. Her middle name Mathilda means mighty in battle. She is in a mighty battle with her imperfection and we can’t fight the fight for her but we are doing everything we can to fight with her everyday by being at the hospital everyday, sitting with her from morning until night. Reading to her, talking to her, praying for her. She is a miracle child.” Dominique tells us
To alleviate the financial burden which bears down on them the family has started a BackaBuddy crowdfunding campaign where they have already raised over R24 000 of their R1 000 000 goal with the help of 39 amazing donors. The family humbly asks and prays for any donations that can contribute to Lorelai’s life-saving surgery.
“We don’t know what we would do without the help of BackaBuddy. They provided us with a platform for Lorelai’s funding and we are really thankful. We have medical aid but we face extreme out of pocket fees because this hospital is not a network hospital. With this extra help we can afford to pay the doctors, staff, and for tests which are saving Lorelai’s life. Not just that, it also helps us to be with her everyday. Every cent helps in the huge ocean of money required to keep her stable so that she can come home after her operation.” says Morne.
Pictured above: Lorelai with her dad, Morne Lubbe
“We are so grateful that our donors have added a new stitch to Lorelai’s heart. Every cent gets her the help she needs. As parents and as a family it breaks our heart that we can’t provide her with the finances to afford her operation, so we as parents and as a family are eternally grateful for her heart warrior donors that are helping us with finances that we as parents can’t do on our own. We thank our donors that are angels in disguise and heart warriors fighting with Lorelai . We see every donation and any bit of assistance is a gift from our mighty God above.” Morne tells us
For updates about Lorelai’s journey, please visit the family’s Instagram page @the_lubbes.
