Tim Bentley’s Fight with ME/CFS: A Journey of Resilience and Community Support

Tim Bentley’s Fight with ME/CFS: A Journey of Resilience and Community Support

In July of last year, 32-year-old Timothy Bentley, a mechanical engineer from Cape Town, found his life suddenly upended. Following what seemed to be a common viral infection, Tim’s health began to unravel in ways he could never have imagined. His diagnosis of Myalgic Encephalomyelitis (ME/CFS), also known as Chronic Fatigue Syndrome, has led to a downward spiral in his health, leaving him bed-bound and dependent on loved ones for even the simplest tasks.

 

Pictured above: 32-year-old Timothy Bentley

 

Tim’s journey to a diagnosis was a lengthy one; it took over eight months from his initial infection to get any real answers. During that time, he endured the deterioration of his physical and mental capacities. Once an avid mountain biker, racer, and BMX dirt jumper who loved going to live concerts and the beach, Tim has now lost access to the activities and lifestyle that once defined him. “It’s been extremely tough on me,” Tim shares. “I was incredibly active before I got sick. Now, it’s so isolating, and every test builds my hopes, only for them to be dashed when the results come back.”

For Tim, every day is a challenge. The debilitating fatigue and body aches prevent even basic movement. He experiences severe light and noise sensitivity, vertigo, dizziness, and cognitive impairments that make screen time or even looking at his phone for more than a few minutes nearly impossible. Adding to the strain, Tim’s body no longer tolerates any physical or mental exertion, temperature changes, or bright lights, which worsen his symptoms. The condition is thought to be linked to a viral trigger, yet the exact biological cause of ME/CFS remains unknown – akin to the mystery surrounding long COVID. Medical experts theorize it could stem from cellular energy production issues, immune system reactions, or even brain stem damage.

 

Pictured above: Tim in his mountain biking element

 

Tim’s partner, Frankie Du Toit (27), has become his steadfast support, taking on all household responsibilities, from cooking and cleaning to managing finances. “Frankie’s been my rock,” Tim says. “She’s taken over everything, been my emotional support, and helps with daily tasks I can’t do myself, like showering.” Tim’s parents, James and Sue Bentley, have also had to adjust their lives significantly. They come by daily to prepare meals, handle the cleaning, and take him to all his medical appointments, all while managing the financial burden of ongoing treatments. “It’s been overwhelming,” Tim reflects. “This whole experience has placed a tremendous financial and emotional strain on my parents. They’ve spent nearly all their savings on my medical care.”

The road to recovery has been paved with medical tests and expenses. Currently, Tim is awaiting the results of a full brain and spine MRI to rule out conditions that mimic ME/CFS, such as cervical spinal stenosis. Additionally, he’s waiting for blood test results to check for heavy metal allergies to titanium, as he has plates and screws in his foot from past injuries. If these tests show no further complications, the focus will shift to managing his symptoms.

 

Pictured above: Tim Bentley

 

Amidst this uphill battle, Tim remains hopeful, inspired by stories of others who have recovered from ME/CFS. “The thought that one day I might be able to ride again and do the things I love is what keeps me going,” he says. His gratitude for the outpouring of support from 136 donors on his BackaBuddy campaign, which has raised over R163,000 so far, is profound. “Thank you so much to everyone who has donated, no matter how big or small,” Tim says. “Thank you to my wonderful friends, especially from the mountain biking community, who have donated and shared my story. And thank you to the kind people who don’t even know me but have still donated. I wish I could personally thank each and every one of you!”

As Tim continues his journey, the generosity of supporters has been a vital source of strength and hope. “It’s been absolutely overwhelming and has taken a huge financial burden off my parents. Knowing that I’m not forgotten during this incredibly challenging time means the world to me,” TIm says. The support allows him to focus on his next steps toward recovery, holding on to the hope that one day he will be back on his bike, conquering new trails, and living the life he once loved.

Support Tim’s campaign here: https://www.backabuddy.co.za/campaign/tim-bentley-mecfs-medical-costs

Turning Birthdays into Blessings: Nicole Arrison’s Mission to Help Families in Need

Turning Birthdays into Blessings: Nicole Arrison’s Mission to Help Families in Need

In 2020, amid the profound impact of the pandemic on families, Nicole Arrison, our very own Systems & Quality Assurance Analyst here at BackaBuddy from Kensington, Cape Town, found a unique way to celebrate her December 21st birthday – by giving back. Inspired by the pressing need she saw around her, Nicole set a goal to provide 21 grocery boxes to families in need. What began as a simple idea soon grew into something much larger, thanks to overwhelming support from friends, family, and even strangers around the world.

 

Pictured above: Box21For21 creator, Nicole Arrison

 

Reflecting on the first year of Box21For21, Nicole says, “I was overwhelmed with the support from all over the world – receiving donations from America, Malaysia, and Sweden. On the day of my birthday, driving around to deliver the boxes, I held back a lot of happy tears just witnessing the joy and relief on people’s faces.”

Since then, the initiative has grown to include stationery relief, providing children with essentials for school. Each year brings challenges, yet Nicole remains undeterred. Although work commitments limited her 2022 efforts, and the funds raised in 2023 fell short of her R21,000 goal, Nicole ensured that every rand was put to good use, contributing to a charity Christmas lunch for the homeless.

 

Pictured above: Groceries included in each box

 

This year, Nicole is starting early, calling on the generosity of supporters to help her provide essential grocery boxes to struggling families. She’s once again launched a crowdfunding campaign on BackaBuddy, raising over R1,000 of her R25,000 goal with the help of six incredible donors. She reflects on the initiative’s broader impact stating: “Sadly, it’s not only the rising cost of living that has hit the communities around me but also the recent storms and harsh winters. Yet, I’m optimistic – South Africa is the home of ‘ubuntu,’ and my hope is that Box21For21 can grow to a point where we have a constant rotation of grocery relief boxes being distributed.”

Each grocery box includes fresh produce, rice, tinned food, hygiene products, and a little bit of festive cheer. For many families, these items make a world of difference. “One mother shared how, after the loss of her son – who was their only source of income – she didn’t know where their next meal would come from. Thanks to the grocery box, that stress was alleviated, and they could enjoy Christmas. Knowing that I could help bring them some festive joy is a feeling I hold very close to my heart.” Nicole says

 

Pictured above: Box21For21 boxes packed and ready to be distributed

 

Nicole’s vision for Box21For21 is bold but grounded in compassion. She believes that with ongoing support, this initiative can help more families in need each year. “Your contribution has an unseen ripple effect, spreading joy and compassion that’s truly incomprehensible. Together, we can make this season brighter for families facing tough times. Thank you for supporting Box21For21 and sharing in my mission to make a difference.”

Support Nicole’s campaign here: https://www.backabuddy.co.za/campaign/nicole-arrison-5669671756856262401

Give the Gift of Reading: Support the Blue Crane Book Project and Light Up a Child’s Christmas

Give the Gift of Reading: Support the Blue Crane Book Project and Light Up a Child’s Christmas

Picture a young child, eyes gleaming with excitement, clutching a book they can now call their own. This Christmas, through the Jakes Gerwel Foundation’s Blue Crane Book Project, you can help make that simple, profound dream a reality for thousands of children.

In the heart of the Eastern Cape’s Blue Crane District, the Jakes Gerwel Foundation’s goal is to deliver not just a gift but the joy of reading to 3,000 young learners. For as little as R50, you can sponsor a gift that includes a captivating storybook, sweets, and a small toy – a complete Christmas package for a child who may have very little to call their own.

“We employ 40 reading assistants who provide intensive one-on-one reading sessions to children with severe reading disabilities,” shares the Jakes Gerwel Foundation. 

These reading assistants work in dedicated classrooms within local schools, transformed into nurturing reading rooms filled with books, colourful shelves, cosy mats, and engaging word games. These safe spaces are not only helping children learn to read but are inspiring a love of literature that could change their lives forever.

Beyond their regular reading sessions, the foundation organises holiday programs with plays, word games, food parcels, and face painting, creating a memorable experience for every child involved. “Through these activities, we aim to foster a sense of community and demonstrate that reading and books can be fun,” the foundation explains. 

You can be part of this wonderful mission to spread Christmas cheer and hope to young learners in Pearston, KwaNojoli, Somerset East, and Cookhouse. By supporting the Blue Crane Book Project’s BackaBuddy crowdfunding campaign where they have raised over R1900 with the aid of 5 incredible donors, you’re joining a movement that brings not only gifts but the potential for a brighter future.

Make a difference this Christmas! Visit the Blue Crane Reading Project for Kids’ BackaBuddy campaign to give the gift of reading: https://www.backabuddy.co.za/campaign/blue-crane-reading-project-for-kids

 

SOURCE: GOOD THINGS GUY

The Grace Factory Delivers 400 ‘Bundles of Joy’ Across Gauteng and KwaZulu-Natal

The Grace Factory Delivers 400 ‘Bundles of Joy’ Across Gauteng and KwaZulu-Natal

The Grace Factory, situated in Gauteng, continues its compassionate mission of supporting vulnerable mothers and their newborn babies. Since 2012, The Grace Factory has acted as a pillar of support for mothers in need, likened to a “Santa for moms,” providing dignity and relief at one of life’s most vulnerable moments. 

With 400 “bundles of joy” maternity packs filled with essential goodies, distributed this past weekend, hundreds of moms across Gauteng and KwaZulu-Natal can now rest a little easier. These colourful bags, emblazoned with The Grace Factory’s logo, symbolise hope and relief for mothers-to-be who are often burdened with immense stress.

Each bundle contains thoughtful items designed to ease the burden of caring for a newborn. Baby clothes, nappies, wet wipes, baby soap, maternity pads, and breast pads are among the essential gifts packed into these life-changing bags. Thanks to the dedication of volunteers, 200 packs were prepared in both provinces over the weekend, bringing smiles and reassurance to 400 families. These maternity packs are distributed to hospitals, clinics, social workers, and community partners. 

 

Watch the video here: https://youtu.be/qGiKjQJRbdA

 

Those who wish to support this heartwarming cause can get involved in various ways:

  • Support their BackaBuddy crowdfunding campaign
  • Donate specific items (the full list is available on their website)
  • Sponsor a packing day
  • Host a donation drive to help another 100 mothers and babies in need

The Grace Factory remains dedicated to placing value and dignity on every mother during this critical time in her life. Their vision is clear: no mother should deliver her baby without the basic care essentials, and through the collective support of communities, they continue to make that vision a reality.

SOURCE: GOOD THINGS GUY

South Africans Rally Behind Wheelchair Rugby Player Musa, Surpassing Crowdfunding Goal in Just Days

South Africans Rally Behind Wheelchair Rugby Player Musa, Surpassing Crowdfunding Goal in Just Days

Musa, a young man known for his infectious smile and enthusiastic spirit, is no stranger to life’s difficulties. Bound to a wheelchair due to Polio, Musa is also an orphan who has never had the opportunity to attend school or experience the joy of reading and writing. He faces challenges in finding work, and on top of the daily struggles that come with navigating life on wheels, Musa finds solace and happiness in one thing that many South Africans hold dear, rugby.

As a dedicated member of a wheelchair rugby team in Mandeville, Musa plays under the guidance of his coach, Ilan Guest. Ilan has coached the team for many years and has a personal understanding of Musa’s plight, as his own brother is also wheelchair-bound. According to Susan Schaum, “He is a selfless and generous individual,” she said of Ilan.

Ilan further explains the extraordinary effort Musa puts into getting to practise each week, saying that despite his many challenges, he pushes himself to make the 10km round trip on busy roads to attend. Missing practice is a rare occurrence for Musa, even though his wheelchair was on the brink of collapse. “The frame is cracked. No welding can salvage it. At some stage, it will collapse with him in it, heaven forbid on a busy road and far from help,” Ilan said.

Determined to lighten Musa’s load, Ilan initiated a crowdfunding campaign on BackaBuddy to provide him with “the best chair he has ever had.” And the response from South Africans has been nothing short of astounding. In just two days, the campaign was fully funded, raising R30,000, and it didn’t stop there. The campaign had surpassed its goal, reaching an impressive R46,150, thanks to the generosity of 81 donors!

This means that not only will Musa get a new wheelchair, but he will also receive additional support for adult-based learning and essentials like shoes, a backpack, axles, and tyres.

The way South Africans rallied behind Musa’s campaign is a remarkable testament to the spirit of community and generosity that thrives in this country. It’s a victory that can stand proudly alongside any Springbok triumph-a reminder that when we come together, we can truly change lives.

SOURCE: Good Things Guy