1 year after his diagnosis, Shaunie (12), loses his battle with Brainstem Glioma.

1 year after his diagnosis, Shaunie (12), loses his battle with Brainstem Glioma.

In July 2020, Shaun and Bianca Pretorius from Benoni, Johannesburg, learned the devastating news that their son, Shaunie (12), a bright and happy young boy, was diagnosed with a rare, aggressive, and terminal type of brain cancer called Brainstem Glioma.

 

A devastating diagnosis 

At the beginning of lockdown, Shaunie was struggling with fatigue and constant vomiting. Thinking that his condition was perhaps brought on by school stress and adapting to online learning, his parents took him to a number of doctors to see what was wrong.

Matters soon got worse when the antibiotics he was given did little to remedy his condition. Shaunie began struggling with his eyesight, had difficulty moving around and battled to communicate.

Shaunie having a CT scan at Linmed Hospital

To determine the cause of Shaunie’s rapid decline, he was taken for CT scan at Linmed Hospital in Johannesburg.

The heartbreaking results of the x-ray determined that Shaunie has a cancerous tumour in his brain stem, a fatal condition known as Brainstem Glioma, which has a median survival rate of only 9 months. 

With doctors unable to operate on Shaunie, he underwent 12 aggressive Radiation Therapy sessions to shrink his tumour and alleviate some of his pain.

To shelter Shaunie from the severity of his condition, his parents didn’t tell him that his tumour was cancerous, but he understood why he was beginning to lose his hair and that he was unwell.

“Hearing that your child, who has always been perfectly healthy, is fighting a deadly disease and only has a few months left to live is devastating. We don’t know how to tell Shaunie that he is dying. We still have hope that God will hear our prayers and that he will make it through” – his mom, Bianca said.

 

As there is no cure for Shaunie’s condition, he was being treated symptomatically with cannabis oil and steroids to help the swelling on his brain and increase his appetite.

 

Shaunie’s Birthday Wish

As only 1% of children diagnosed with Brainstem Glioma live up to 5 years, the Pretorius family focused on keeping Shaunie as healthy, as pain free and as comfortable as possible so he could enjoy the time he had left with his parents and his little brother, Mattie (3).

 

Shaunie with his little brother, Mattie.

Focusing on all the things that spark joy for a young boy, Shaunie’s uncle Juandre Botha launched a crowdfunding campaign on BackaBuddy, to fulfil Shaunie’s ultimate dream of owning a Playstation 5, just in time for his 12th birthday on the 9th of March.

Shaunie on his 12th Birthday

 

With generous support, Shaunie’s campaign raised over R24 000 and he was able to get the playstation he always longed for and was able to cover more of his medical expenses.

 

Shaunie playing with his brother

Update: Rest in Peace, Brave Shaunie.

On the 2nd of July 2021, Shaunie lost his battle with Brainstem Glioma.
“It is with devastating sadness that we would like to let you know that Shauni passed away in his father’s arms this morning after a year fighting Brainstem Glioma.The family’s hearts are broken and we please ask for your prayers and love for them on this most devastating day. Shauni is a hero, having fought through all this time and will be remembered as being forever young – a bright, kind and loving child who brought joy to everyone around him.Thank you to everyone for all the love and support through the year that Shauni and his family have been fighting this monster disease.Thank you to all the contributors, well wishes, prayers, blessings and kind words from you all. It is greatly appreciated.You are welcome to send us messages on this group so that we may forward on to Shauni’s family.” – A message posted on Shaunie’s Facebook group.

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far raised over R200 Million.

 

Masks for Medics re-ignites emergency COVID-19 relief fund for the 3rd wave 

Masks for Medics re-ignites emergency COVID-19 relief fund for the 3rd wave 

To help support medics during the third wave of the COVID-19 pandemic, Masks for Medics, a non-profit initiative based in Cape Town, South Africa, has re-launched its crowdfunding campaign to supply non-hospital-based front-line healthcare workers with medical-grade personal protective equipment (PPE).

Pictured above: “We still need to be caring for the carer by providing much need PPE especially during this third wave,” Dr Julie Etellin, one of the founding doctors of Masks For Medics

Masks for Medics was launched by a group of caring family doctors in May 2020, with the profound understanding that in order for individuals, families and communities to be kept safe during the pandemic, it is imperative that our courageous healthcare workers on the front line have the necessary resources to keep themselves safe.

 

Picture above: Keeping the nurses at Badisa safe.

Generous public support 

Over the last 11 months, with tremendous support from generous donors both locally and internationally, as well as over R605 000 raised through their crowdfunding campaign on BackaBuddy, Masks for Medics has supported frontline workers by:

  • Distributing PPE to 212 individuals and 386 institutions including 29 102 gowns, 345 080 aprons, 251 535 surgical masks, 29 248 respirator masks, 10 484 visors, 11 286 gloves, 18 792 sanitiser bottles, 401 pulse oximetry monitors and 478 thermometers – all medical grade.
  • They have also provided 261 sanitiser foot pedals and 328 Perspex screen dividers to allow elderly care facilities to continue allowing visitors and to keep administrative staff safe.

Picture: Cooks and staff at over 550 feeding scheme locations in the Western Cape now have PPE!

Protecting carers in the third wave

With the increase of COVID-19 cases in this third wave with a new variant, Masks for Medics, aims to broaden their beneficiary base within the Western Cape province to include homeless shelters and more feeding schemes with a continued focus on Elderly Care Facilities and individual Healthcare Workers, ensuring that those who are frontline carers receive medically certified PPE. This will not only keep them safe but also the children, the elderly and the sick in our communities.

Pictured above: Masks for Medics Directors – Dr Lauren Lee, Dr Sonia Hough, Dr Julie Etellin

“We call on those who can, to please donate generously and assist us in fulfilling our mandate of keeping our Frontline Workers safe! Please support our BackaBuddy campaign and help grow our emergency relief fund. This will directly impact us all and help Masks for Medics in caring for the carers,” says Dr Julie Etellin, one of the founding doctors of Masks for Medics.

Support Masks For Medics on BackaBuddy:

Alternatively donate Via Snapscan:

https://pos.snapscan.io/qr/masks-for-medics

All donors to this campaign are eligible to receive a Section 18a Tax Certificate upon request.

Picture above:Thank you Masks For Medics!

About Masks for Medics

Drs Lauren Lee, Sonia Hough and Julie Etellin are 3 family doctors who banded together during a unique time in history. After witnessing the chaos the pandemic had on the entire world, Masks for Medics needed to act swiftly and be prepared to keep our healthcare workers safe. The prediction filtering in from Europe was for overwhelming numbers of sick people and they knew we needed to urgently collaborate on ideas to protect our frontline so they can better serve patients within their communities. Thus, the emergency campaign called Masks for Medics was launched. The initiative strives to procure and provide the necessary PPE to all our heroes on the frontline. The medical grade PPE we procure includes gowns, aprons, surgical masks, respirator masks, visors, gloves, sanitiser, pulse oximetry monitors and thermometers.

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R260 Million.

 

Asher-Rheed Medical Bills

Asher-Rheed Medical Bills

Asher-Rheed is our pride and joy, our Rainbow baby. Our fighter in every sense of the word. We are from Parklands, Cape Town.

After going into early labour at 15 weeks and almost losing him, he fought to stay with us, at 34 weeks he made his grand entrance into the world, after only 18 days in the NICU we took our trooper home with us. He has been a blessing ever since.

In and out of hospital

Unfortunately despite every Dr and clinic app showing he was progressing well and doing great suddenly in February 2021 we had to rush him to the ER, the result was him having emergency surgery, the first of two. As we prepared ourselves for the second one after success on the first, we were faced with more health issues and now have loads of tests that need to be done to determine what exactly is wrong. lung tests, allergy tests, ENT’s, pneumologist the list goes on. Our medical aid is depleted and after all this, we still have that pending second surgery to do this year. We need help covering all the medical bills.

CLICK TO DONATE NOW

 

Help Asher get back to school

Our 19-month-old ball of sunshine and happiness deserves a normal childhood free from sickness and constant Dr trips. He loves school and hates missing so much of it. We hate seeing how not being at school hurts his little heart, we as parents just want to get him back on track and hopefully 100% healthy as fast as possible. We prayed for this little boy, we would give our lives for this little boy.

We are asking for any help to keep his medical bills, and medications covered so that he can get back to being at school all the time, thriving and growing and learning. Back to walking into school every day waving goodbye because he is so happy there, he doesn’t even cry when he is dropped off. No more constant coughs, runny noses, sleepless nights for weeks on end. No more sore body or wheezy chests, no more specialists and operations. Just a normal happy healthy almost 2-year-old boy. Please if you can spare something we would be ever so grateful and if not at least share it because you never know who might see it and be able to assist.

 

CLICK TO DONATE NOW
Finding your Network & Getting Started

Finding your Network & Getting Started

If you missed our introduction to crowdfunding and still need to create a campaign, please click through to this guide.

In this article, we will discuss the first steps in your crowdfunding campaign after you have signed-up. We will guide you through receiving your first donations, how to find your network and touch on the power of social media in fundraising online.

Getting started – Your First donation

Just like no one likes to be the first person on the dance floor, the members of the public typically support causes once they have a few initial donations from the beneficiaries family and friends . 

We have also found through data research that campaigns with initial support from family and friends also tend to raise 220% more funds than those who don’t. 

This is because your first donors, in a way, vet your campaign. They let others know that you are a trusted person, and that your campaign is for a reasonable request because they know you or have interacted with you at some point in your life.

 

How to communicate with close family and friends:

Accompany your BackaBuddy crowdfunding campaign link with a short personalized message to introduce your fundraiser. We recommend sending a Whatsapp, Facebook message, email or SMS to close family and friends, extended family, neighbours, co-workers, social groups or sportsclub to get started.

See this example of a message you could send:

“Hi Monique, I hope you are well!

I have created a crowdfunding campaign on BackaBuddy to feed 100 families in Pietermaritzburg who are unable to provide for their families during the lockdown.

We have so far raised R 15 000 towards our fundraising target! Funds raised will be used to purchase digital food vouchers for those in need.

Please support us by making a small donation on BackaBuddy

If you’re unable to contribute, please be so kind as to share our campaign with your friends and loved ones. 

https://www.backabuddy.co.za/feeding-pietermaritzburg

Did you know? 98% of WhatsApp messages are both opened and read within the first 3 seconds. – Hoodsuite . 

Now that you have shared your campaign with those closest to you, such as your friends and family and hopefully, if you were able to, donated to your own campaign, it’s time to reach out to your wider network.

 

Finding your network

You will find in your crowdfunding journey, that most of your donors will be people you know. This is because your friends and family know you well, they know your character, your lifestyle and they have a personal connection with you in some way. 

This is not to say that the public can’t be generous in their support of worthy causes.

Who makes up your network?

  1. Close family and friends.
  2. Extended family, neighbours, co-workers, social groups, sportsclub
  3. Social media followers and friends (Facebook/Whatsapp/Twitter/Instagram/YouTube/Pinterest/LinkedIn/Snapchat).
  4. School/University friends
  5. Your local community, church and the wider public.
  6. Local Media (Local paper, radio stations, pubic forums)

 

 

Sharing your crowdfunding campaign on Social Media

Crowdfunding campaigns are 5 times more likely to succeed if shared on social media. Take a look at our social media guides to reach your wider network:

 

Every week the BackaBuddy team showcases a few campaigns to share on social media. When posting about your campaign, please mention us:

@BackaBuddy on Twitter and Instagram

@BackaBuddySA on Facebook 

Snapscan

Lastly, ask your campaign manager to create a Snapscan code for your campaign for an additional donation option.

BackaBuddy has partnered with Snapscan to generate unique snapscan QR codes for each crowdfunding campaign on the platform. Once scanned, donors will be able to donate to your campaign easily via the unique code. These are also great to add to your campaign, print on posters or share on social media. 

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R390 Million.

  • Raise funds for an individual or cause.
  • Register your non-profit organisation.
  • Create a crowdfunding campaign to raise funds for a non-profit organisation.
Developing your crowdfunding concept and campaign name

Developing your crowdfunding concept and campaign name

Crowdfunding campaigns centered around a creative concept tend to capture the attention of potential donors and typically raise more funds.

In this article, we will show you how to make use of various fundraising opportunities throughout the year and even how to raise funds to support a cause on your birthday!

Coming up with a creative concept

Whether you are raising funds for a person or to support a charity, crowdfunding allows individuals the freedom to come up with their own creative ideas to relay their message and promote their cause.

Take a look at these creative BackaBuddy campaigns that went the extra mile

In 2018, Andrew Patterson pledged to climb Table mountain every day for a year with his 365 Ubuntuclimbs campaign to raise funds for Habitat for HumanityOne Life for Kids and The Sunflower Fund. By sharing daily video updates on his social media and inviting members of the public to join him on his hikes, Andrew managed to raise over R380 000 on BackaBuddy.

Andrew Patterson

In 2018, founder of Rise18, Zanele Hlatshwayo from Soweto, participated in 18 marathons, totaling over 648km to continue The South African Depression and Anxiety Group’s national suicide toll-free hotline in honor of her late father who took his own life due to depression. Read more.

Zanele Hlatshwayo

In 2017, American intern, Joseph Payne, supporting the DOCKDA Rural Development Agency, climbed Devil’s Peak, Table Mountain, and Lion’s Head with his campaign to purchase bicycles for disadvantaged students in the Northern Cape who walk the same distance to school every day.

In 2019, Leilani Kuter from Roodepoort, pledged to walk 27km per day, for 27 days, covering a distance of 729km, 27 years after the rape ordeal that changed her life.

Wearing yellow, the colour her attacker wore, Leilani broke her silence to empower sexual assault and gender-based violence survivors and free them from the stigma it carries. In sharing her very personal story, Leilani was able to crowdfund over R250 000 to purchase rape kits and comfort packs for those in need.

Her bravery also caught the attention of the national media and opened up a dialogue around the ‘taboo topic’. Read more.

To raise funds for Emil Erasmus’ cancer treatment, Zane Groenewald from Pietermaritzburg, pledged to shave his hair live on Facebook when he reached his crowdfunding campaign target of R5000. Through many small donations from close family and friends, Zane exceeded his initial target.

Zane Groenewald with Emil Erasmus and his dad.

Participating in sporting events

Every year, thousands of South Africans participate in events such as the Comrades MarathonDiscovery 94.7 Ride JoburgLittle Optimist raceIron ManTwo Oceans Marathoncolour run and the Munga to raise funds for a good cause.

Once you have paid your entry fee for the event itself, select a charity on Backabuddy and create your own fundraiser for a charity that inspires you.

In 2020, Ross Hindle took on the Iron Man 70.3 with his campaign to raise funds for his friend, Prince Chikezie, to complete his medical degree

Prince Chikezie

Byron Leggett and 5 of his closest friends took on the Comrades Marathon to raise funds to purchase a highly specialized eye tracker to allow Isabella Beck, a young girl diagnosed with Cerebral Palsy to access her communication system through her eye movements. Read more

Byron Leggett, Bryan Hellon, Teran Peyper, JP van Zittert, Greg Kilfoil and Craig Pike with Isabella Beck before the Comrades.

Supporting a cause on your Birthday

In lieu of gifts, it’s becoming a popular trend for individuals to crowdfund for various causes on their birthday.

Founder of Animal Rescue and Rehabilitation Org Trust (ARRO), Juanita Aitkenhead created a crowdfunding campaign to raise R4800 for her organisation on her 48th birthday. Highlighting the importance and positive impact of donations in a short, emotive video, Juanita came very close to reaching her fundraising goal.

Important fundraising days to remember 

Mandela Day – 18th July 

Every year on International Mandela Day (18th of July), we celebrate not only the birth of Tata Madiba but his 67-year commitment to social justice and servant leadership.

By volunteering 67 minutes of our time, we are encouraged to act in kindness, amplify the voices of those that often go unheard, serve our local communities, churches, and charitable organizations or offer kind donations to support causes in need of support.

Learn more about Mandela Day here

Taking on the mammoth task of rescuing and maintaining the Shongweni Resource Reserve, Greg Vogt and Sara Agostini paddled 67 km on Mandela day with their crowdfunding campaign which raised over R63 000. Read more.

Greg Vogt and Sara Agostini

Giving Tuesday – 1st December

On 1 December 2019, following the widely recognized shopping events Black Friday & Cyber Monday#GivingTuesday kicks off the charitable season when many individuals focus on their holiday & end-of-year giving.

Harnessing the power of social media & collaboration, #GivingTuesdaySA encourages individuals and non-profits alike to reach out to their communities, with the aim of creating meaningful social change and spreading goodwill.

Learn more about Giving Tuesday here

Crowdfunding at Christmastime

During the festive season, there is a noticeable increase in giving as individuals and non-profits look to spread Christmas joy. Whether you would like to raise funds to purchase gifts for disadvantaged children or host Christmas parties for the elderly, consider creating a crowdfunding campaign during the holidays.

In December 2019, Porky’s People, created a campaign to purchase gifts to the value of R200 to give the children of Thandi House, a registered non-profit children’s home a warm and memorable Christmas. Read more.

Instagram: Porky’s People

Choosing your crowdfunding campaign name

An important part of establishing your crowdfunding concept is what you decided to call your campaign.

Your campaign name should be no longer than 5 words – think of it as a title of a book. Consider the most important elements of your story, the beneficiary, and the positive impact you will create.

A catchy title could be the difference between individuals scrolling past your post or clicking through to make a donation. Remember, your campaign name is your first impression, avoid generic statements and make it memorable!

Take a look at these BackaBuddy campaign names that caught our attention:

Tata to Mandy’s TatasMy Final Year University Fees,Mobilize Maguzi365Ubuntu climbsHelp Kennith Hit The Road#CodeClimberMiracle for MaineSave AaronCancer Support in Xhosa and Masks for Medics.

Create your own crowdfunding campaign

  • BackaBuddy has supported more than 10 000+ individuals and charities in setting up crowdfunding campaigns for medical fees, tuition and various other causes in South Africa.

For more information email [email protected].