Every year on the last day of February, the world observes Rare Disease Day, a global initiative aimed at raising awareness about rare diseases and the challenges faced by those affected. In South Africa, this day serves as a poignant reminder of the importance of early diagnosis, research, and community support for individuals battling rare conditions.
Supporting the Community
With BackaBuddy being a platform to raise and support people living or battling rare diseases, many crowdfunding campaigns are actively supporting individuals facing rare diseases. Here are some campaigns that are currently raising funds:
Zeeya’s Battle Against Rare Disease
16-month-old Zeeya Moodley from Port Elizabeth is bravely battling an aggressive form of Meningococcal disease. Despite his young age, Zeeya shows incredible strength as he fights this rare, life-threatening condition. His community has come together, offering support and donations to help his family through this difficult time. The funds raised are being used for his medical treatments, hospital stays, and ongoing care.
Zeeya’s journey is a testament to resilience, and with your help, he can continue to fight.
7-year-old Joshua Louwrens’ battle with an aggressive form of cancer, Non-Hodgkin Lymphoma (NHL), has united many in the community to provide financial assistance for his treatment. The funds raised will go towards covering the cost of his chemotherapy, medical bills, and other essential treatments required for his recovery.
Kyle Skidmore’s (29) struggle with a rare genetic disorder has prompted his grandparents to start a crowdfunding campaign for his treatment. The funds raised will help cover the costs of specialized treatment, therapy, and medical interventions that are essential for improving Kyle’s health.
These campaigns not only provide financial relief but also foster a sense of community and shared responsibility.
Where to Seek Help in South Africa
If you or someone you know are dealing with a rare disease, here’s where you can find help and resources through a number of organizations dedicated to rare diseases:
Rare Diseases South Africa (RDSA): This organization provides support, advocacy, and information for individuals affected by rare diseases. They work to raise awareness, improve access to healthcare, and provide guidance on navigating the complexities of rare disease diagnoses and treatments. (Visit: www.rarediseases.co.za)
The South African Rare Disease Society (SARDS): Another key resource in South Africa, SARDS focuses on advocacy and community support for patients with rare conditions. They work on policies to improve care and increase research for rare diseases in South Africa. (Visit: www.sards.org.za)
The Department of Health: The South African government offers various resources through the Department of Health, which is involved in the coordination of healthcare services for rare disease patients. (Visit: www.health.gov.za)
The South African Human Genetics Society (SAHGS): This organization provides resources and support for genetic conditions, which are often at the heart of many rare diseases. They offer guidance on genetic testing and counseling. (Visit: www.sahgs.org.za)
By raising awareness, supporting ongoing research, and contributing to crowdfunding efforts, we can make a significant difference in the lives of those affected. Start a campaign on BackaBuddy to raise funds for your medical needs and help others facing similar challenges get the support they need.
A group of second-year Interior Design students from Nelson Mandela University (NMU) is stepping up to make a meaningful difference in their community. Driven by a deep desire to impact lives positively, these students have taken on the challenge of transforming the Protea Child & Youth Care Centre in Forest Hill, Gqeberha. This initiative reflects not just the students’ skills, but also the powerful spirit of Ubuntu, using one’s abilities and resources to support and uplift others.
The Protea Child & Youth Care Centre is home to children who have faced significant adversity, many of whom are orphaned or victims of heartbreaking circumstances. Understanding the importance of creating a welcoming and nurturing environment, the NMU students have been working diligently to design proposals aimed at revamping two key spaces within the centre. The goal is to provide a brighter, more uplifting atmosphere that will bring joy and comfort to the children who live there.
Charista, one of the students involved in the project, shares, “This initiative is an incredible opportunity for us aspiring designers to apply our skills in a way that positively impacts our local community while creating a space that the children can enjoy for years to come.” Her words reflect the passion and commitment driving the group as they move closer to executing their designs.
The project was officially started on Tuesday 25 February, with the next steps set for the practical phase, scheduled to take place from March 29 to April 6. The students are not only working hard to finalize their designs but are also seeking to raise R15,000 on their BackaBuddy crowdfunding campaign of which they have already raised R3000 with the help of 6 generous donors to bring their vision to life. This crowdfunding goal will support the purchase of materials and resources necessary to make the revamp a reality.
This project is a powerful example of how young people can make a tangible difference by using their talents and resources to contribute to the well-being of others. The collaborative effort to transform the centre is not only an exercise in design but also an embodiment of the true spirit of Ubuntu: lifting others up through selfless acts of kindness and community support.
The NMU Interior Design students are proving that even small acts of kindness can lead to monumental change. With their dedication and the community’s support, this project is set to leave a lasting impact on the children of Protea Child & Youth Care Centre, showing them that they are not alone and that there are people who care.
Little Zeeya Moodley, 16 months from Port Elizabeth, Eastern Cape has faced a battle that no child should ever have to endure. Born on September 18, 2023, Zeeya’s life was forever altered when a severe case of bacterial meningitis swiftly escalated into a rare and aggressive form of Meningococcal disease. The infection brought devastating complications, resulting in the loss of his fingers and feet and affecting his brain, vision, and heart.
Photo Caption: Zeeya in hospital
A Battle Beyond His Years
Admitted to the intensive care unit in October 2024, Zeeya has experienced multiple infections, organ failures, and three resuscitations. His young body endured challenging procedures and treatments that tested his limits. Along his journey, he encountered fierce battles with gangrene, infections of the heart and lungs, and a kidney infection that required dialysis. Today, his vital organs have stabilized, offering a glimpse of promise amid the daunting struggles he has faced.
Zeeya is cared for by his devoted parents, Shaakiera (30) and Shiraaz (33), along with an 8‑year‑old sister and a 4‑year‑old brother. Their lives were turned upside down as they watched their playful child become confined to a hospital bed.
“It has been incredibly difficult for our family to see Zeeya, once such a playful and happy child, now bedridden. His condition has taken a toll, with the loss of his feet and fingers, but we remain grateful for his strength and resilience in fighting through this,” says his mom, Shaakiera.
Photo Caption: Zeeya before the disease
Adding to the family’s heartache, Zeeya’s siblings have not seen him for the past four months. They often ask where their brother is.
“The adjustment to his new needs will be challenging for all of us, as we learn how to stimulate his brain and keep his muscles moving,” she shares.
Amid these trials, the community has rallied behind Zeeya and his family. In February 2025, his mother launched a crowdfunding campaign to help cover the mounting medical expenses. So far, 54 generous donors and offline donations have contributed R23,900 toward a target of R250,000. Every contribution goes directly toward easing medical bills, securing specialized rehabilitation, and funding long‑term home care that includes physical, occupational, and speech therapy.
Looking Ahead to a New Chapter
With Zeeya’s organs now stable, preparations are underway for his return home. Medical teams have supplied essential equipment like CPAP machines, and Shaakiera is undergoing training to provide the specialized care required after discharge. Although the road ahead remains long—with continuous therapy and the need for a full‑time home caregiver—the family holds onto optimism. They look forward to the day when Zeeya’s laughter once again fills their home.
Photo Caption: Zeeya before the disease
Each small step forward is celebrated. The family invites those who have encountered similar hardships to share advice and support. As they poignantly state,
“We are deeply grateful for the support we’ve received from BackaBuddy and the broader community during this challenging time. If anyone has gone through a similar experience, we would welcome hearing from you. Any assistance—whether it’s a hospital bed, a blood pressure monitor, or even basic supplies like nappies—would be deeply appreciated.”
The funds raised through his crowdfunding campaign will secure the medical care, therapies, and home support necessary for him to build a future filled with more smiles, laughter, and cherished moments.
To support Zeeya visit their BackaBuddy campaign link here:
One person’s ‘small donation’ is another’s fighting chance. For 7-year-old Joshua Louwrens, this truth has turned his battle with cancer into a story of hope, resilience, and overwhelming community support. Thanks to the generosity of Joshua’s Angels, his network of donors and well-wishers, this brave little boy has surpassed his crowdfunding goal in record time, giving him the upper hand in his fight against cancer.
Joshua’s story began with what seemed like a minor issue, a small bump on his neck. A routine visit to the doctor led to a prescription for antibiotics, with the initial belief that the bump was caused by a swollen lymph node due to an infection in his gums. When the first round of treatment failed, another round of antibiotics followed. Though the infection cleared, the bump remained.
Concerned, Joshua’s family took him for a third medical consultation. This time, doctors decided to admit him to the hospital to investigate further. Surgery was performed to remove the bump, but due to its location, doctors were unable to remove it entirely. It was then sent for testing.
On 28 January, Joshua’s family received the devastating news: their beloved boy had Non-Hodgkin Lymphoma (NHL). “Nothing could have prepared us for this news, and it felt like our entire world was shattered in an instant,” his family shared.
The days that followed were filled with uncertainty and urgency. Joshua underwent a series of scans to determine if the cancer had spread, followed by multiple trips into surgery. Doctors installed a central line to aid in his treatment, and then came another challenge, his hometown of Newcastle did not have the necessary pediatric oncology facilities to treat him.
With little time to spare, Joshua and his family made the 350-kilometer journey to Pretoria, where he underwent further testing, including a bone aspiration and a spinal tap, to assess whether the cancer had reached his bone marrow or spinal cord. On 1 February, Joshua received his first round of chemotherapy, marking the start of his six-month battle against the aggressive disease.
Cancer treatment is a relentless battle, physically, emotionally, and financially. Beyond the medical bills, consultations, and procedures, the logistics of traveling between Newcastle and Pretoria added another layer of stress for Joshua’s family. They quickly realized that their medical aid would not cover all necessary treatments and expenses.
Determined to give Joshua the best possible chance, his family turned to their community for help. The response was nothing short of extraordinary.
In just a few days, an army of supporters, now known as Joshua’s Angels, rallied behind him. They donated, shared his story, and spread the word. Small acts of kindness multiplied, and together, they raised an astounding R189,738, far surpassing the initial goal of R150,000 on BackaBuddy!
Joshua’s battle is far from over, but thanks to the unwavering support of his Angels, he now faces it with renewed strength and financial security. Beyond the funds, Joshua has received an even greater gift, the knowledge that he is not alone. At just seven years old, he has learned one of life’s most beautiful lessons: that kindness exists in abundance and that together, we are stronger.
As Joshua continues his journey to healing, his family and his Angels remain by his side, proving that when communities come together, mountains can indeed be moved.
For over a decade, Nick Hamman (33), a beloved 5FM radio presenter, has connected with audiences across South Africa. Now, he’s using his platform to champion an amazing cause – helping Thulasizwe School for Autism in Soweto build a kitchen and food technology classroom to empower students with autism.
“I’ve always believed in using my platform to make a difference. When I heard about the amazing work Thulasizwe School for Autism does to support children with unique needs, I knew it was something I wanted to be a part of. Education and inclusivity are issues close to my heart.” – Nick Hamman
Pictured above: 5 FM’s Nick Hamman
The Thulasizwe School for Autism, in association with Friends of Daniel, is the first autism-specific school in Soweto. Founded in 2016, the school provides education and essential support for 100 students aged 4 to 18. Despite their dedication, the school faces significant challenges, including the lack of a proper kitchen and classroom facilities for vocational training. Currently, meals are prepared in a makeshift kitchen, and students eager to learn culinary skills have had to travel to external facilities, an arrangement that is no longer sustainable.
To further develop the students’ talents and promote their independence, the school urgently requires two vital facilities:
A Fully Equipped Kitchen: To provide nutritious meals for students and sustain the school’s feeding program year-round.
A Food Technology Classroom: To teach essential life skills, instill independence, and provide students with hands-on training in food preparation.
Pictured above: The kitchen that the students are currently utilizing
Beyond serving the school, these facilities will double as a bakery, benefiting the local community by creating job opportunities, fostering entrepreneurship, and generating much-needed revenue for the school’s sustainability.
This initiative is proudly supported by Friends of Daniel, an organization inspired by Daniel Sayed (15), a talented young boy on the autism spectrum. Daniel’s unique perspective and artistic skills have been a profound source of inspiration. Recognizing his gifts and the challenges faced by autistic individuals, Daniel’s family envisioned creating something meaningful to celebrate neurodiversity and offer support to others on a similar journey.
Pictured above: Nick and Daniel Sayed
Through Daniel’s creativity and the family’s passion, Friends of Daniel seeks to inspire understanding, celebrate abilities, and provide a network of support for autistic individuals and their families. Since January 2022, Friends of Daniel has worked hand in hand with Thulasizwe School for Autism, fostering inclusivity and empowering the next generation.
Crowdfunding on BackaBuddy
To help the Thulasizwe School build these new facilities, a BackaBuddy crowdfunding campaign has been created where they have already raised over R116 000 with the help of 50 incredible donors.
“This campaign is about giving children with autism the chance to thrive in environments where they feel safe, understood, and empowered. I’ve seen how a little support can create incredible opportunities for those who face challenges. This is about trying to level the playing field and making sure every child has a shot at success.” – Nick
SuperSportBet Doubles Your Impact
To maximize the impact of this initiative, SuperSportBet has pledged to match all donations, rand for rand, up to R500,000. Every contribution will go twice as far in helping these students gain independence and real-world skills.
If the campaign’s fundraising goal is not fully met, donations will still be put to good use – funding school improvements such as the renovation of play areas, the purchase of essential learning materials, and the development of a sensory room to better support students’ needs.
“Every contribution, no matter how small, has the potential to create massive change. By supporting this campaign, you’re not just donating money—you’re investing in brighter futures for these children and their communities. Let’s show the power of collective kindness and make a difference together!” – Nick
Christopher “Rasta” Maseko, a 42-year-old safari guide from Mpatseni, a small village in Nelspruit, Mpumalanga, tragically lost his left eye in an accident caused by a drunk driver in November 2024.
For years, Christopher has shared his deep love for Kruger National Park with visitors, captivating them with his knowledge of wildlife and his infectious humor. His journey from barber and spaza shop owner to respected safari guide is nothing short of remarkable. Yet, his life changed forever in November 2024 after a devastating car accident that cost him his left eye.
Christopher’s path to becoming a guide was anything but smooth. After matriculating in 2001, his dreams of further education were halted due to financial constraints. Undeterred, Christopher took on various roles—running a small shop, cutting hair, and later working at a plant nursery.
It was at the nursery that his love for nature blossomed. “I learned so much about indigenous and exotic plants, and guests visiting the Kruger admired my garden designs,” he shares. “Their encouragement gave me the confidence to pursue guiding.”
In 2009, after many setbacks, Christopher earned his nature guide qualification. His passion for wildlife and knack for storytelling made him a sought-after guide, freelancing for multiple companies and leaving lasting memories for guests from around the globe.
Photo above: Christopher before the accident
A Life-Altering Accident
On a quiet Sunday morning, while driving to work, a drunk driver veered into his lane, causing a head-on collision. The impact of the crash resulted in a windshield wiper piercing his left eye.
Looking back, Christopher reflects, “Losing my eye has been incredibly challenging. I can no longer drive the larger vehicles, which impacts my work. But I am so grateful to still be here. That’s what matters most.”
Photo above: Christopher after the accident
Rallying Around Christopher
Seeing the difficulties Christopher now faces, his close friend and colleague, Dianne Wichman, started a crowdfunding campaign on BackaBuddy to raise R30,000 for his prosthetic eye and to help with his recovery.
“Christopher, along with all the guides who work with us, is considered part of our family and we will continue doing everything we can to make sure he is able to recover with as little financial stress as possible. BackaBuddy is an amazing platform to reach people who are in a position to help. No matter how big or small, the donations have made a huge difference and it is heartwarming to know that there are so many people who are prepared to help Christopher” ~ Dianne
Photo above: Christopher with guest’s children
The outpouring of support from the community has been nothing short of heartwarming, with 19 donors already contributing over R25,000. The response has truly shown how much Christopher is loved and appreciated.
“For me, the kindness of others has been a reminder that even in the darkest times, there is so much good in the world,” says Christopher, deeply moved by the generosity.
Despite the hurdles, Christopher remains optimistic. “I’ve faced many challenges in life, and this is just another one to overcome,” he says with determination. His journey is a powerful reminder of resilience, hope, and the strength of community.
On 27 January, he had his final check-up, and was given the all-clear. This means that on 29 January his prosthetic eye will be fitted—an important step toward his recovery and a symbol of his unyielding spirit.
