Reece Trumpelmann (17), a teenager from Bapsfontein, Gauteng, with the courage of a lion, was diagnosed with Gorlin Goltz Syndrome, an extremely rare cancer condition in 2016.
After bumping his jaw while playing on a jumping castle, Reece was taken to hospital, and after a number of tests and X-rays at Steve Biko Hospital, Reece’s parents Marsha Trumpelmann (43) and Bjorn Trumpelmann (46) were informed that their son had an autosomal dominant inherited disorder which is virtually unknown in South Africa.
Reece’s mom, Marsha describes her son’s harrowing medical journey.
“Gorlin Syndrome, also known as Nevoid Basal Cell Carcinoma Syndrome, is an inherited condition that affects many areas of the body and increases the risk of developing various cancerous and non-cancerous tumours.
It is caused by the loss of functions due to mutations in the tumour suppressor gene Patch1 which encodes the Sonic Hedghog Pathway.
You get different levels of this syndrome but unfortunately, Reece has been hit hard with most of the criteria. Currently, some of his symptoms are Multiple odontogenic tumours in his jaw which are attacking him constantly.
Our son has had over 40 removed and lost 16 teeth, he has had multiple bone grafts as well as multiple basal cell carcinomas, Extensive Calcification of the flax celebri, Scoliosis, Kyphosis, Bifid rib, Major sinus issues, Deviated Septum, Endocrine system problems, Heart problems (fibroma), GERD stage 4, Palmer and Planter pits, Hydrochephylys, Glaucoma, and Sleep apnea.
Picture above: Marcsha and Reece
His current specialists are Pediatric oncologist, Geneticist, Maxilofacial surgeon, Neuro Surgeon, Cardiologist, Dermatologist, Endocrinologist, Ophthalmologist, Specialised Dentistry, ENT, and Plastic Surgeon.” says Marsha
Reece is currently being treated at Arwyp, Linmead, Wilgers, Glynwood, Midstream and so many other different hospitals by specialists to help give him the best care and comfort.
“We have finally after a long road found a magnificent team that truly has Reece in their best interests. I am so grateful. Reece needs so many things, tests and procedures done at the moment, and because of the finances, I just cannot do it. Our medical aid runs out in February already; as you can imagine, the bills are huge. Some things are not covered at all.”
Managing Reece’s chronic illness has placed tremendous financial strain on the family, who are faced with constant mounting medical bills.
To help cover Reece’s co-payments on his top-tier medical aid, the family have launched a crowdfunding campaign on BackaBuddy, with the support of a non-profit organisation, Arms of Mercy, to ensure Reece gets the treatment he needs.
Currently, Reece’s fundraising target stands at R200 000.
“I will never ever give up fighting for this warrior. He has been to hell and back. He has had more operations than I can remember since he was diagnosed.” – says Marsha
Picture above: Reece with his parents, Marsha and Bjorn, and his sisters Abigail (23) and Savannah (21).
Since last November, Reece has had an unsuccessful major jaw and sinuses reconstruction surgery. He has had over 50 tumours removed and recently came out of ICU and high care after having another major surgery
“Our son, Reece is truly a fighter and such a beautiful soul. All I want for Reece is happiness and comfort. I want to try to alleviate his pain and discomfort. I am just a mom fighting for my boy. Thank you for reading this and if you feel it in your heart please share his story. We truly need help in any way or form. God bless you all.” – says Marsha Trumpelmann.
South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R330 Million.
Maluuk Explores Foundation, a non-profit organization founded by Adrienne Short from South Africa,hopes to visit 20 secondary schools in the Hwange province, Zimbabwe, to provide 788 girls with a long-term sustainable solution to sanitaryware.
It is estimated that over 2.3 billion people do not have access to essential sanitation services, and only 27% of the population have access to a home-based handwashing facility with soap and water. The lack of these basic facilities at home makes managing periods at home a major challenge for women and adolescent girls.
Based on research, Maluuk Explores Foundation has found that 45% of girls end up making use of old cloth and rags, 29% use cotton wool, 18% use pads and 3% reported even using newspapers and leaves.
There are currently very few or no sanitary products available to schoolgirls in disadvantaged countries, be it disposables or reusables because the materials are too expensive or difficult to acquire.
Girls shouldn’t miss school. Period.
Becoming a woman should be a celebration. Instead, in many parts of Africa, menstruation remains shrouded in shame and ignorance, impacting the health, education and dignity of women and girls.
Without a sustainable sanitary solution, girls potentially miss 528 days of education throughout their schooling career due to the lack of facilities at school, lack of awareness around menstruation, embarrassment, menstrual pain, and the inability to afford hygienic sanitary materials.
If girls are missing their education because of menstruation, this reduces their future career prospects. These factors have a negative bearing on their educational performance.
“I am hoping that you will see my vision and join forces with Maluuk Explores Foundation to implement our project objectives of closing the gender inequalities, assisting to end period poverty, empowering the women and youth in these areas and investing in the future female leaders”, says founder, Adrienne Short.
The goal is to provide a sustainable eco-friendly solution that would see the girls through their secondary school career by offering them a re-usable product that requires only hand washing, and should with proper care and maintenance last 3-5years.
To secure funding for Project Phumelela, Maluuk Explores Foundation has launched a crowdfunding campaign on BackaBuddy, with a fundraising target of over R200 000 to help provide long-term, sustainable solutions to a critical problem that affects the health and livelihood of many young girls.
“We Believe Lack of education about menstruation is one of the many barriers to achieving adequate menstrual hygiene worldwide. Creating awareness and openness is one of the most effective ways to help teach girls how to properly manage their menstrual hygiene.”
Since the launch of the campaign, over R9000 has been raised with kind contributions from 14 donors.
South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R330 Million.
Shireen Hermans, a 29-year-old mother from Mitchells Plain, Cape Town, has an eye disease called keratoconus, a condition which causes extremely blurred vision and light sensitivity.
Life is exceptionally challenging for Shireen, who has less than 8% sight in only one eye and is considered legally blind.
Behind her beautiful smile, gentle nature, courageous and resilient spirit, Shireen feels isolated and depressed due to her condition, which has interrupted her life and made simple tasks very difficult.
Shireen yearns for the simple pleasures in life – like seeing her daughters’ faces and helping them with their homework.
“For Shireen, sight loss means she can’t walk her young daughters to school or safely catch a bus with them. She simply can’t see the pavement or read the signs at the bus stop. It’s not safe for her to venture out alone. Living with keratoconus is like life in permanent lockdown.” – says Amanda Seccombe, Founder of The Eyes2Eyes Foundation.
Giving Shireen her sight back
At this stage, Shireen’s corneas (her eye’s outermost lens) are irregular, with steep troughs and cones.
As glasses and ordinary contact lenses will not restore Shireen’s sight, the only way for her to achieve functional vision and avoid total blindness is to receive costly custom-fit scleral lenses.
In November 2021, Shireen was referred to The Eyes2Eyes Foundation, an organisation dedicated to providing individuals the gift of sight, as corneal disease is vastly underfunded and under-resourced in public hospitals in South Africa.
Hoping to receive support from the public, the Eyes2Eyes Foundation, has launched a crowdfunding campaign on BackaBuddy, with a fundraising goal of R25 000, which will allow Shireen to receive specialised lenses that will be designed and manufactured for her in New Zealand.
Funds raised will also cover the cost of Shireen’s fitting process which will be done in Cape Town, her monthly optometrists appointments and training on how to use the life-saving lenses.
“Restoring my vision will mean I can recognize the faces of my family and friends – not just their voices. I will be able to read to my girls. I wouldn’t have to rely on my daughter to read me prices at the stores and guide me with things all the time. Having my sight restored means I can get back to work and help with our financial problems at home. I will get my confidence and independence back and stop living a blurred depressed life, where I have to pretend everything is good” – says Shireen
South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R330 Million.
Jenny Tshuma (29) from Soweto, Johannesburg, who works as a Bolt driver has become a victim of a brazen drive-by shooting which occurred in Rosettenville, Joburg South on 30 April 2022.
Caught in the crossfire, the husband and father of 2 young children was shot in the back. The stray bullet, which exited through his stomach, has now rendered him paralysed.
Currently, Jenny is in the ICU at Baragwanath Hospital, recovering from serious injuries. While he is finally off the feeding tubes and is recovering well, he is still struggling to stand on his own, and doctors are unsure if he will walk again.
“Our lives have changed in such a short space of time. It is truly painful to think that Jenny might not be able to walk again and will have difficulty finding work to support our children, Kwazinkosi (7) and Samuel (3) who are so little”– says Jenny’s wife Victoria.
Upon hearing the news of the tragic incident, non-profit organization, The Angel Network, launched a crowdfunding campaign on BackaBuddy, to support Jenny during this devastating time.
Jenny, who was head of his household and the sole breadwinner of his family, now has no means of earning an income to cover the cost of a carer, his mounting medical bills and the extensive physical and emotional therapy he will require.
Since the launch of the campaign, more than R8000 has been donated to Jenny and his family, who are reeling in the wake of this trauma, through many kind donations on the platform.
All donors who contribute to Jenny’s campaign are eligible for a Section 18A tax certificate issued by The Angel Network.
Bill Wedderburn (90), a philanthropist and COVID-19 survivor from South Coast, Durban, completed his 900km by 90 years charity drive on 29 April 2022 in support of families of healthcare workers affected by the pandemic.
Completing his final kilometre to the rousing sounds of Chariots of Fire, Bill was cheered on by fellow Renishaw Hills residents.
“We are so proud of Bill’s incredible achievement that has touched the lives of so many people, far and wide, since he started in June last year,” said Phil Barker of Renishaw Property Developments.
“He is the true embodiment of the community spirit and nature of giving that is found within Renishaw Hills. We are so proud. He is a real inspiration, not only to Renshaw Hills residents, but people of all ages regarding purpose, goals, dedication and compassion for those in need. I hope Bill becomes a shining example of the good that can be achieved by each and every one of us. We all have our part to play.”
Bill got the idea for this charity initiative during his time at Netcare Kingsway Private Hospital in January 2021 while recovering from a Covid-19 infection. Living with chronic kidney disease and being a prostate cancer survivor, Bill was considered high risk. However, the dedicated medical fraternity did everything they could to ensure his recovery during his two-week hospitalisation.
In fact, it was during his stay that Bill learned of the death of 36-year-old nurse, Hlengiwe Mbeje, an employee of Netcare Kingsway Hospital who’d died of Covid-19 shortly before he was admitted. Mbeje is one of many healthcare workers who have died as a result of contracting Covid-19 while caring for patients. This tragedy, coupled with the incredible support he’d received, prompted Bill to do something in return.
Working with a dedicated team that includes a practising surgeon, attorney, IT specialist and former Springbok captain Jean de Villiers, Bill has established the Covid Healthcare Workers’ Family Fund to raise funds for the relatives of those who’ve died fighting the virus.
COVID-19: Bill is committed to support families of healthcare workers (Image: Sandile Ndlovu)
For the fundraising initiative launched on BackaBuddy, Bill committed to walking 900km before his 90th birthday on 9 June 2022, clocking 100 kilometres for every decade of his life.
For every kilometre missed, Bill said he’d pay R10 into the fund – and he’s encouraging other like-minded sponsors to support this cause. In support, Renishaw Property Developments, the developers of Renishaw Hills, contributed R10 for every kilometre Bill walked.
Since the launch of the campaign, Bill has raised over R22 500 through kind contributions from 27 donors.
Speaking at the event, Bill reminded everyone about the reason behind this walk:
“The funds will go to the families of healthcare workers who passed away from Covid-19, as many of those families have been left destitute with their breadwinner gone. The walk also aided me in recovering from my illness, and I really encourage everyone to get out there and exercise! I’d like to thank everyone who has contributed, and to the Renishaw Hills community for your greetings and encouraging comments on my daily walks through the village. Those really kept me going. Although I’ve reached my goal six weeks early, I think I’ll continue going and try to reach 1 000km by my birthday!”
Lerato Monyatsi (41) from Krugersdrop, Gauteng, is the founder of SkirtGirlHiker Foundation, a non-profit organisation that aims to restore dignity to Ostomy and Cancer Patients by conquering mountains and hiking with purpose.
In 2020 while many lives had been shaken by the Covid-19 pandemic, Lerato was diagnosed with stage 3 Colorectal Cancer. This meant receiving immediate medical attention and undergoing multiple surgeries as well as chemotherapy and radiation.
Through this journey, Lerato also became a permanent Ostomate after losing her colon to cancer and faced exorbitant medical costs. Still to this day, she requires costly medical supplies and ongoing treatment.
Lerato’s serious health battle made her realise the harsh reality that many South Africans lack access to basic medical care, and thus she created The Skirtgirlhiker Foundation.
“After I confronted this stage3 Colorectal Cancer Mountain and survived it, I felt the urgent need to create awareness about this type of Cancer and what being an Ostomate means…Being an avid multi-day hiker I felt my ostomy gave me another chance at living life to the fullest while making an impact on the lives of those less fortunate.” – says Lerato
New heights
With a mandate to close the care gap and raise funds for the medical attention, supplies and mental wellness of Colorectal Cancer patients and stoma patients, Lerato aims to summit the rooftop of Africa, Mount. Kilimanjaro at 5895m.
Lerato, who is an avid explorer and adventurer, will begin her charity climb on 2 June 2022 and aims to reach her peak, in triumph, in 8 days.
“I have been so anxious to share the news because this journey feels so surreal and the purpose is bigger than me. Nothing carries more potential for change than individual acts of human kindness.” – says Lerato
Through a crowdfunding campaign launched on BackaBuddy, Lerato hopes to raise R20 000 or more for her foundation. Since the launch of the campaign 8 donors have made kind contributions to the value of R2400.
“Join hands with us as we make an impact in the lives of South Africans’ stoma and cancer patients. You can make a difference now. Now more than ever, your support means everything. Thousands of people like you help us stand up and move mountains to restore the dignity of South Africans, one community, one cancer patient and one Ostomate at a time.” – says Lerato
South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far raised over R329 Million.
