Loadshedding Adds to 11-Year-Old’s Struggle with Rare Disorder and Ventilator Dependence

Loadshedding Adds to 11-Year-Old’s Struggle with Rare Disorder and Ventilator Dependence

Elizabeth Jordaan, an 11-year-old girl from Robertson, Cape Town, is a testament to the human spirit’s resilience and determination. Despite the odds stacked against her since birth, Elizabeth remains an energetic and positive child who is eager to learn and experience life to the fullest.

When Elizabeth was just 6 months old, she was diagnosed with Spinal Muscular Atrophy with Respiratory Distress (SMARD), a rare genetic disorder that affects muscle strength and causes respiratory distress. As a result, Elizabeth has been dependent on a home ventilator to help her breathe, which her mother, Sanet Jordaan, watches over like a hawk.

Living on a farm in Robertson, an hour away from the nearest hospital, Sanet is plagued by the fear of what could happen if the home ventilator stops working or gives problems. The fear is compounded by the ongoing load shedding and power outages in South Africa, which can leave Elizabeth vulnerable and in danger.

Pictured above: Elizabeth Jordaan

But despite the challenges, Elizabeth is a bright, talkative, and loving child who is eager to learn and experience life to the fullest. She is an inspiration to everyone who meets her, a reminder that there is always hope, no matter what life throws our way.

To help Elizabeth and her family cope with the ongoing struggles of her condition, as well as loadshedding, a crowdfunding campaign has been launched on BackaBuddy. The campaign aims to raise funds for a backup ventilator, which will provide Elizabeth with the peace of mind and security that she deserves.

The campaign has received an outpouring of support from the public, with contributions from 20 donors totalling R72,302 so far. Despite this, the family is still far from their target of R200 000, and they are appealing to the public for support.

Pictured above: Elizabeth Jordaan

Elizabeth’s story is a testament to the human spirit’s resilience and determination. It is a reminder that even in the face of life’s toughest challenges, there is still hope, and that every small act of kindness can make a big difference. By supporting Elizabeth and her family, we can help ensure that she has the tools she needs to live life to the fullest and breathe easily.

To support Elizabeth’s campaign, visit: 

https://www.backabuddy.co.za/elizabeth-jordaan-5459752366835439927

Alternatively, donate via Snapscan: 

https://pos.snapscan.io/qr/ElizabethJordaan

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R380 Million.

Gift of the Givers Launches Aid Efforts in Turkey and Syria After Devastating Earthquakes

Gift of the Givers Launches Aid Efforts in Turkey and Syria After Devastating Earthquakes

Image: Gift of the Givers (Facebook)

In the early hours of February 6, 2023, Turkey and Syria were rocked by a powerful 7.8 magnitude earthquake, followed by a 7.5 magnitude tremor. The devastating quakes resulted in thousands of casualties and widespread damage. 

As search and rescue efforts are hampered by harsh weather conditions, the Gift of the Givers has taken action to help the affected communities. 

The organisation has evacuated children from their Bayt Kareem Child Care Centre in Gaziantep, Turkey, and prepared its medical teams in Darkoush, Syria to treat incoming casualties. The death toll continues to rise, with over 4300 fatalities reported so far.

The Gift of the Givers has been contacted by the Turkish Ambassador to South Africa and the Consul General in Cape Town, as well as the SA Ambassador to Turkey, Dipou Letsatsi-Duba, to provide assistance. 

Image: Gift of the Givers (Facebook)

In response, they have launched a crowdfunding campaign on BackaBuddy to purchase essential aid, including medical supplies, equipment, food, and more. They are also expanding their volunteer medical and search and rescue teams, ready to assist in any way they can.

To support the affected communities and the Gift of the Givers’ efforts, you can donate to the initiative on BackaBuddy:

https://www.backabuddy.co.za/responds-to-turkey-earthquake

Alternatively, donate Via Snapscan:

https://pos.snapscan.io/qr/Gift_of_the_Givers_Turkey

 

 

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R380 Million.

 

Spectacular Cape Town Burns Night Returns to African Event Calendar: A Celebratory Fusion of Scottish and African Culture

Spectacular Cape Town Burns Night Returns to African Event Calendar: A Celebratory Fusion of Scottish and African Culture

Cape Town Burns Night is back, and it promises to be a spectacular event that will bring together individuals from various backgrounds to celebrate Scottish culture with an African twist.

This year’s celebration marks the return of the largest Burns Night event in Africa after being postponed due to the pandemic. The event, which will take place on February 4, 2023, at the Mercedes Benz AMG in Century City, is organised by the Africa Scotland Business Network and is held in honour of the Scottish poet Robert Burns (1759-1796).

The Africa Scotland Business Network, based in Cape Town, is an international business network connecting companies across Africa to Scotland and back. Since its inception, the network has grown globally and now has a direct members footprint in 15 countries. The organisation is committed to promoting business, cultural, and social connections between Africa and Scotland, and Cape Town Burns Night is one of the ways in which it does this.

One of the biggest highlights of this year’s sold out event is the new venue, the Mercedes Benz AMG in Century City, which is sure to provide a breathtaking backdrop for the festivities. The event also boasts a lineup of top speakers, including the Deputy Speaker of the National Assembly, Mr. Solomon Lechesa Tsenoli, and global speaker and presenter, Richard Mulholland. There will also be a special appearance by international commercial lawyer, Stephanie McDonald and CEO of Ascensos, John Devlin.

The Drums and Pipes of the Cape Town Highlanders will provide an unforgettable show-stopping display, setting the stage for an evening of cultural entertainment, poetry, and Highland dancing. Attendees will also have the opportunity to enjoy a delectable three-course meal, complete with an experiential dessert.

‘Burns Night’ has a strong charitable ethos and raises substantial amounts for NPOs in South Africa and Scottish NPOs working in South Africa. This year, one of the beneficiaries of the event is BackaBuddy, South Africa’s largest donations-based crowdfunding platform for worthy charitable causes.

Africa Scotland Business Network hopes to use the occasion to spread goodwill and build connections between individuals from different parts of the world.

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R350 Million.

 

Animals in Need: Cape Town Model Takes on 207 km Ultra Marathon in aid of Animal Clinic.

Animals in Need: Cape Town Model Takes on 207 km Ultra Marathon in aid of Animal Clinic.

Ryan “Choppy” Pike, a 29-year-old model from Hout Bay, Cape Town, is on a mission to make a difference in the lives of animals in need. 

Through the launch of crowdfunding campaign on BackaBuddy, Ryan hopes to benefit the Mdzananda Animal Clinic in Khayelitsha, an animal advocacy organisation that he has recently connected with.

Pictured above: Ryan with his pup, Mila.

The challenge

On 16 February 2023, Choppy, who is an animal lover at heart, will be pushing his limits to the extreme by running the Tankwa Crossing, a 207 km Ultra Marathon from Calvinia to Ceres, to raise funds for the Mdzananda Animal Clinic.

The race, which takes place during one of the hottest months of the year with temperatures reaching a scorching 50 degrees Celsius, is a gruelling single stage race with a cut off time of 50 hours. Choppy will have to face the harsh conditions, pushing his body to the limit, all for the love and care of animals in need.

“I grew up with many different cats and dogs around in the house and they’ve always been a huge part of my life. I feel like animals are capable of turning a house into a home, they’re furry best friends who are always excited to see you,” says Choppy. “That’s why I can’t stand the thought of animals suffering and not receiving the care they need. That’s why I am doing this, for them. For the animals that can’t speak for themselves, I want to be their voice.” – says Ryan

Pictured above: Ryan with his pup, Mila

 

The campaign, which has already raised over R45,000 towards his fundraising target of R100,000, will benefit the Mdzananda Animal Clinic, which is currently running over the carrying capacity of their facilities. 

Funds raised will contribute towards a new inverter to protect the organisation’s digital x-ray machine from potential damage due to load shedding and power cuts South Africa is currently facing.

 

Pictured above: Mdzananda Animal Clinic outreach

“I’m sure every South African can relate to the frustrations of having to deal with load shedding, which is bad enough. However, fear of losing a pivotal piece of equipment used to help the animals in your care tends to elevate the stress levels by a couple of notches. Hence the push to raise funds and  buy the clinic some insurance in the form of a new inverter,” says Choppy.

Choppy has been blown away by the tremendous amount of support he’s received since the launch of his campaign.  

 

Pictured above: A dog is dipped to combat external parasites such as ticks and fleas while a young boy from the community watches. Mdzananda Animal Clinic outreach

“Thank you so much to all those who have shown support through messages, follows or opening their wallets for the cause. It’s crazy how motivating it is for me to see a community starting to build and people so ready to help where help is needed. Together we can make a real difference in the lives of these animals.” – says Ryan

Choppy’s selfless efforts in running this gruelling race in the scorching heat to raise funds for the animals in need, is truly admirable. He is truly going above and beyond to make a difference, and his passion and dedication is truly inspiring. 

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R380 Million.

 

Fundraising for medical treatment in South Africa

Fundraising for medical treatment in South Africa

When faced with a challenging medical diagnosis families often aren’t prepared for the financial burden placed on them at the most vulnerable time in their lives.

For this reason, many South Africans are turning to crowdfunding to raise the funds for a loved one in need of medical treatment, rehabilitation, and the purchase of medication and medical equipment.

 

Start a crowdfunding campaign on BackaBuddy

If you or a loved one is in need of raising funds for medical costs, click here to register on BackaBuddy.

Have any questions?

BackaBuddy is here to help.

Email: [email protected] or send us a WhatsApp at +27 60 741 0255.

 

What is crowdfunding?

Crowdfunding is the practice of fundraising online by setting up a project to receive many small donations from a number of individuals through the use of social media and the press.

Through emotive storytelling, images and video content, campaign creators are able to present their cause to the public to help reach their specified fundraising target.

As long as you have an earnest medical need that can be validated by a doctor or health practitioner, you can raise funds on BackaBuddy.

 

What can you raise funds for?

Over 49800 individuals have successfully crowdfunded on BackaBuddy to cover the cost of their Cancer Treatment, Cystic Fibrosis treatment, Bone Marrow Transplants, Kidney Dialysis, Heart surgery, Liver transplant, Cochlear implants and Wheelchairs.

Friends seeking to support a family in distress often launch crowdfunding campaigns to assist with expenses such as living costs, transportation, and other necessities during a catastrophic medical diagnosis.

 

Getting started

Get started with your crowdfunding campaign by sending us your story, funding needs and references by completing this form.

If you aren’t sure how to go about your campaign, please contact [email protected] and our team will guide you and walk alongside you.

Once your campaign is set up, you will have a shareable link that you can share on your social media, the press and most importantly, with family and friends, who can help you spread the word and donate to your cause.

 

Medical campaigns that captured our hearts

Thus far BackaBuddy has raised over R385 Million to support worthy causes in South Africa.

Take a look at a few of the medical campaigns on BackaBuddy that touched the hearts of donors both locally and abroad.

A Bone Marrow Transplant for Aaron

Aaron Lipschitz (7) from Sea Point, Cape Town, is the first child in South Africa to be diagnosed with Interleukin-12 Receptor Defect, a rare genetic condition that affects the immune system.

The only way for Aaron to overcome his recurrent infections and survive this condition was to have a bone marrow transplant, which successfully took place in August 2018.

Campaign link: https://www.backabuddy.co.za/save-aaron

 

Mandy’s Breast Cancer Treatment

When Salon owner Mandy Lottering from Pietermaritzburg was diagnosed with Invasive Ductal Carcinoma in 2017, she set up a crowdfunding campaign on BackaBuddy with the support of her friend, Angela. 

Penning an emotional open letter to supporters, Mandy reminded herself that she is many things, a mother, a wife, a cheerleader, and a friend, but she is not her cancer. 

Thankfully with the support of her community, Mandy is now in remission and still counts her blessings every day.

Campaign link: https://www.backabuddy.co.za/mandys-tatas

The Lottering Family. From Left to Right: Savannah, Jarrod, Juan & Mandy

 

Heart surgery for Naledi

When Naledi Thahanyane (4) from Johannesburg was 6 months old she was put in the care of Juno Aurora Haven, a home for abused and neglected children in Sandton.

When Naledi was taken to a paediatrician for a regular checkup three years ago, it was discovered that she had a heart defect, a growth just below the left aorta.

Without funds to cover the cost of Naledi’s operation, medication, medical supplies, sterilisation equipment as well as a home nurse, a campaign was launched on BackaBuddy.

 Thankfully, Naledi’s surgery was funded and she remains in stellar health.

Campaign link: https://www.backabuddy.co.za/heart-surgery-for-naledi

 

A Cochlear implant for Neave

After failing her hearing test, doctors discovered that Neabe Barrett was born deaf. With the family’s medical aid covering a portion of the funds needed to fit Neave with a cochlear implant, a campaign was launched to cover the additional funds needed.

Thankfully, Neave raised the funds she needed and her cochlear implants were switched on in early 2017. It was such a special moment. 

Campaign link: https://www.backabuddy.co.za/neave-barretts-journey-to-sound

 

A liver transplant for Aiden

Aidan Maddocks from Pietermaritzburg was diagnosed with Biliary Atresia at birth, a childhood liver disease that only affects 1 in 10,000–15,000 live births. 

After receiving a Kasai Operation at Albert Luthuli Hospital when he was only 3 years old, Doctors told Aiden that he would need a liver transplant in the next decade.

When the day arrived, Aiden’s family set up a BackaBuddy campaign to cover the costs of his treatment when his donor’s liver arrived.

Campaign link: https://www.backabuddy.co.za/aidan-liver-transplant

 

Prosthetics for Ubuko

Ubuko Mpotulo, from East London, was diagnosed with Meningococcal Septicaemia,  a condition where bacteria enter the bloodstream and multiply, damaging the walls of the blood vessels. He was only 10 years old.

At the age of 3 years old, Ubuko underwent a Bi-Lateral Amputation and finger amputation, when the lining of his blood vessels became damaged and obstructed his narrow arteries and eventually cutting off his blood supply. He was soon fitted with prosthetics and adjusted to his ‘new normal’ very quickly.

To support Ubuko with his ongoing medical costs, as his prosthetic sockets will need to be refitted and changed at least 14 to 16 times until he stops growing, 7 Round Tablers from East London dedicated the 70.3 Ironman challenge to raise funds for the young man on BackaBuddy.

Campaign link: https://www.backabuddy.co.za/steps4ubuko

 

A Wheelchair for Ellané

Ellané Burger from Wellington, Western Cape was diagnosed with an extremely rare condition called Disabling Pansclorotic Morphea, when she was only 8 years old. The condition affects the skin, nerves and muscles making it difficult to jump, run, walk short distances or even stand still.

To give Ellané a new lease on life, her parents set up a campaign on BackaBuddy to raise funds for a specialized wheelchair that has broadened her horizons,

Campaign link: https://www.backabuddy.co.za/ellane-burger

 

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One-year-old with uncontrollable epilepsy needs urgent help

One-year-old with uncontrollable epilepsy needs urgent help

Jasmijn Duvenhage, a little one-year-old girl from Die Wilgers, Pretoria, was diagnosed with temporal lobe epilepsy at only 4 months old, after several tests, including an EEG test that measures electrical activity in the brain. 

Jasmijn has a rare genetic condition that causes difficulty to control, severe epilepsy, slow development, and low muscle tone. 

After starting therapy for temporal lobe epilepsy, Jasmijn’s condition unfortunately worsened, and she was diagnosed with West syndrome, for which she had received a prolonged course of extremely expensive steroid therapy. 

This was not covered by the family’s medical aid in 2021. 

“By Jesus’ Mercy and Grace, she came out of West syndrome, a miracle that very few children live to tell about. Unfortunately, Jasmijn developed several forms of horrifying epilepsy ranging from mild episodes to absolutely life-threatening episodes. This happened several times a day.”

Nadia, Jasmijn’s mom, has not been able to trust Jasmijn’s care into the hands of another healthcare provider yet, as Jasmijn has an extremely complex medication and feeding regime, including the ketogenic diet, which can be 100% life-threatening if administered incorrectly. 

Nadia thus forms part of Jasmijn’s therapeutic team and had to stop working in order to be available for her daughter’s care. This places additional financial strain on the family.

To date, Jasmijn has feeble muscle tone, she cannot sit up, turn over, or crawl. She also has trouble moving her head, which necessitates 24-hour monitoring as she also has trouble swallowing her secretions, which has led to several choking episodes with aspiration pneumonia and lung collapses, requiring non-invasive ventilation and admission to paediatric ICU.

This is all even despite the family’s best attempts to manage and prevent these episodes with physiotherapy and suctioning at home. With her severe developmental delays, she doesn’t yet smile and does not always react to people around her.

To give Jasmijn the best care, her family has spent their entire savings and exhausted their medical aid to cover the costs of her medication and purchases such as a wheelchair, bathing equipment, anti-epileptic drugs, rehab sessions, hypoallergenic baby formula and now the ketogenic diet, as well as a special needs car seat.

The parents are praying that with the Lord’s continual Mercy and Grace, as well as the right therapy, Jasmijn will still have a chance at a normal life.  

Uncontrolled epilepsy remains the problem: every time she has a seizure, it may damage her brain and delay her development further.  She is currently on 5 anti-epileptic drugs (amongst others) but her epilepsy is still not under control. The family is doing everything they can to ensure the best possible outcome for Jasmijn.

In need of urgent financial assistance to help Jasmijn with her medical condition, the Duvenhage family have launched a crowdfunding campaign on BackaBuddy to appeal to the public for much-needed support. 

Since June 2022, Jasmijn has also been in and out of several paediatric ICUs, battling various infections, due to her poor immune system. This brave little girl even had to spend Christmas 2022 and new year 2023 in the paediatric ICU.  

The parents and doctors are hoping to get her home soon though. Currently, she is receiving 24-hour continuous feeds and will have to be managed on non-invasive ventilation at home until her muscle tone improves enough for her to breathe well on her own. 

To date, approximately R111 000 has been raised from 47 incredible donors, towards their fundraising target of R250 000 

“We are doing everything we can do to make sure that Jasmijn gets the correct medical care. All contributions towards our BackaBuddy campaign will be used to ensure that Jasmijn receives the best therapy. “

Please help give Jasmijn a better fighting chance to live a more victorious life with her loved ones.

Support Jasmijn by donating to her campaign:

https://www.backabuddy.co.za/jasmijn-duvenhage

Alternatively, donate via Snapscan

https://pos.snapscan.io/qr/JasmijnDuvenhage 

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R380 Million.