5-month-old Leah Strydom from Westonaria in Johannesburg, is a tiny warrior who has been diagnosed with congenital hearing loss due to the uncommon occurrence of having different hearing loss levels in each ear.
‘Leahis such a delight at five months old! Every time she wakes up, her face lights up with the biggest smile, radiating joy and contentment. She’s always chattering away, and her happiness is infectious – being around her just fills you with warmth and happiness. She hardly ever cries, taking everything in her stride, which makes parenting feel effortless. Mornings with her are absolutely heartwarming; her smile sets a positive tone for the whole day. Leah is already so social and playful, curious about everything around her. Her calm and peaceful presence makes spending time with her the highlight of the day. She’s not just a joy to be around; she’s like your little partner in all the daily adventures!’ explains Leah’s mum Mandy.
Pictured above: Baby Leah Strydom
Leah’s story begins during her time in the womb, where unforeseen circumstances added a layer of complexity to her health. At 19 weeks pregnant, Leah’s mother Mandy was hospitalised with Influenza A. Concerns arose when, during the 24-week scan, Leah’s head growth lagged by two weeks, prompting a referral to a sonographer and then a fetal specialist. The possibility of Microcephaly, a neurological condition characterised by an abnormally small head size in infants, was discussed, but negative blood tests ruled out infections. Despite recommendations for DNA testing and an MRI, Leah’s parents chose to embrace her as she was, trusting in what they believed to be God’s plan.
‘As Leah’s parents, we were deeply saddened when we learned about her hearing loss. Despite facing difficulties during pregnancy, we were committed to caring for our beloved daughter no matter what challenges came our way. At first, we didn’t fully understand the extent of her hearing impairment, so we prepared ourselves for potential struggles. Fortunately, her hearing loss turned out to be less severe than we initially feared, especially compared to the concurrent concern of microcephaly. Without delay, we began learning about hearing technology, hoping for a positive outcome that would help Leah experience the world of sound. ‘ says Mandy
Pictured above: Baby Leah with her mum Mandy, dad Peet, and sister Mialeigh
Leah’s hearing loss became apparent when she failed her newborn hearing test. A series of OAE (Otoacoustic Emissions), sounds that the ear produces in response to external stimuli, tests and an AABR (Automated Auditory Brainstem Response), type of hearing screening or diagnostic test that measures the electrical activity of the auditory nerve and brain stem in response to sound stimuli, followed, all indicating that she could hear, albeit not perfectly. The conclusive diagnostic ABR (Auditory Brainstem Response) and SSR (Steady-State Response) confirmed the hearing impairment, marking the beginning of Leah’s unique exploration into the world of sound.
‘As parents, we went through a roller coaster of emotions when we found out that our 4-month-old baby has damaged hair cells and severe hearing loss. It was tough news to digest, but we took comfort in knowing that there are options for hearing solutions. With the help of hearing devices, we believe she can achieve the best possible hearing.’ – says Peet, Leah’s dad.
Leah’s parents then embarked on a journey of extensive testing and medical examinations. MRI results came back normal, ruling out any brain-related issues. However, Leah’s right ear presented mild to severe sloping hearing loss, while her left ear exhibited moderate to severe flat hearing loss, resulting in an average of 39% hearing loss.
Pictured above: A happy, baby Leah
Crucial for Leah’s speech and language development in these early stages, bilateral hearing aids have been prescribed. The Audiologist recommends fitting them by the time she turns six months old. However, the financial burden of the hearing aids and the costs associated with the numerous tests conducted pose a significant challenge.
‘Leah has been wearing demo hearing aids for about two weeks now, and we’ve seen incredible progress. Once we have the funds, she’ll get her permanent set programmed. In the beginning, she struggled a bit with adjusting to them, sometimes feeling overwhelmed and overstimulated. But lately, we’ve noticed a positive change. She’s gone from being quiet and cautious to laughing and chatting more when she’s wearing hearing aids.’ – explains Leah’s parents.’ explains Leah’s parents
Quotes ranging from R35 190 to R53 705 for the hearing aids have added financial strain, leaving Leah’s family uncertain about covering the testing fees. This has led the family to set up a crowdfunding campaign on BackaBuddy with a target of R372 462 of which they have already raised over R2 500 with the help of 6 amazing donors.
Pictured above: Baby Leah at her first Christmas photo shoot with mum Mandy, dad Peet, and sister Mialeigh
Their aim of this campaign is to raise the necessary funds to provide Leah with the hearing aids and cover the costs of the tests.
‘Thank you for taking the time to read Leah’s story. We’re grateful for any support you can provide. Together, we can make a real difference in Leah’s journey to better hearing. Whether you’re able to contribute financially or not, every bit of support means a lot to Leah and our family. With the demo hearing aids, Leah has already made great progress, and your generosity can help her continue to thrive. Your support will not only contribute to Leah’s hearing journey but also serve as a testament to the kindness that binds us as a community.’ they conclude.
UPDATE:
As Leah’s first birthday approaches, her family is filled with both hope and urgency. Recently, they discovered that Leah’s hearing on her left side is much worse than initially thought, making a cochlear implant an essential step for her development. The procedure, however, comes with a significant cost of R373,000, and the family is determined to raise the necessary funds in time for this life-changing implant.
Next month also marks Deaf Awareness Month, a time that holds special significance for Leah and her loved ones. They dream of celebrating her first birthday by giving her the precious gift of hearing, allowing her to experience the world in a way she has never known. The journey has been challenging, but with the support of the community, Leah’s family remains hopeful that they can reach this goal and provide her with the chance to hear the laughter, music, and love that surrounds her every day.
Lize Marais, from the Helderberg region of the Western Cape, embodies determination and compassion as she strives to keep the doors of Milkwood Learning Academy and their beloved Toy Library open. This academy is a haven for children with special needs, including those with learning disabilities, autism, and Down syndrome.
With a crowdfunding campaign on BackaBuddy, Marais is rallying the community to secure the future of 18 students by the end of March 2024, facing an urgent financial crisis that threatens the academy’s existence.
A Sanctuary for Learning and Growth
Milkwood Learning Academy, nestled in the heart of the Helderberg region, is more than an educational institution; it’s a place where vulnerable children discover their potential in a nurturing and accepting environment. Founded by Marais seven years ago, the academy has become a critical resource for affordable, quality education tailored to children with intellectual disabilities. “It’s a place where they don’t feel rejected, they feel safe and loved,”Marais explains. Her commitment to these children is unwavering, driven by a vision of inclusivity and empowerment.
Marais shares poignant insights into the impact of Milkwood on its students: “Over the years I have seen so many success stories. Children come to us with very high anxiety levels. Some were rejected by society, others were enrolled in mainstream schools, and were subject to bullying from other children. Many of my children can’t speak a word or read a word when they join Milkwood. Later they learn to talk, play with others, and even read books.”
Pictured above: Lize Marais with Milkwood Learning Academy students
Crowdfunding on BackaBuddy
Despite the positive impact on its students, Milkwood’s financial sustainability is at risk. The school’s inclusive fee structure, designed to accommodate families of all economic backgrounds, has led to financial shortfalls. “Our goal is to enable children with special needs to live meaningful lives within their communities,” Marais says, emphasizing the need for support to keep this haven for learning alive.
Pictured above: Lize Marais with Milkwood Learning Academy students
Since the launch of the BackaBuddy campaign, 13 donors have come together to raise R15,581 towards Milkwood’s fundraising target of R60 000 to address their immediate financial needs, including rent and daily operational costs
“As the deadline approaches, the story of Milkwood Learning Academy and its fight for survival serves as a testament to the impact of community support and the difference it can make in the lives of children with special needs, who are the most vulnerable among us.” – says Bernelie Barwise ( Social Media Manager at BackaBuddy.)
To support Lize Marais and the Milkwood Learning Academy, visit their BackaBuddy campaign link:
19-year-old Aidan Roos from Three Rivers Vereeniging had his life dramatically altered in a matter of seconds. Aidan, a passionate stunt biker, faced a life-altering accident on the 9th of February 2024 that not only shattered his dreams but also left his family grappling with unforeseen challenges.
The incident occurred innocently enough – a routine trip to Asia Yummy for takeout turned into a nightmare as Aidan slipped on a wet floor, his face colliding with a balustrade. What initially seemed like minor injuries took a grave turn after a hospital visit and X-rays uncovered a more severe situation.
Image above: Aidan Roos with his mum, Roeline
Making the situation even harder was the absence of medical assistance for Aidan and his family. The hospital couldn’t perform the facial operation because Aidan’s face was swollen, so they had to send him home. However, Aidan’s insurance refused to cover the operation, claiming that the hospital should have kept him instead of sending him home.
Aidan’s dreams of heading overseas for bike stunts and mini movie scenes in China were abruptly halted. “This accident has changed everything for Aidan and has made his bright future come to a standstill,” his mom Roeline expressed. The recovery prognosis, estimated at six months, adds a layer of complexity to the situation.
Image above: Aidan in hospital after the accident
On the 19th of February 2024, Aidan underwent extensive surgery to address multiple fractures in his facial bones. The procedure involved delicate work to repair nerves and muscles, including the placement of plates under the eye socket. Aidan’s entire frontal skull required meticulous reconstruction as his face was broken in five places, marking a pivotal moment in his journey to recovery.
Crowdfunding on BackaBuddy
In the face of this adversity, Aidan’s family turned to the power of community support.
Launching a crowdfunding campaign on BackaBuddy, they urgently sought financial assistance to cover the expenses of Aidan’s surgery. The response from the community has been nothing short of miraculous, with over R114,000 raised towards their fundraising target of R160 000, thanks to the generosity of 60 amazing donors.
Image above: Aidan in hospital after his operation
Aidan’s mom Roeline expressed her heartfelt gratitude, stating, “Out of the bottom of my heart, I just want to thank everyone for their generosity, love, and support and most of all everyone’s prayers.” The funds raised have already made a significant impact, securing Aidan’s chance at a healthy, normal life.
While Aidan has successfully undergone surgery, his battle is far from over. The family still needs to raise funds for his aftercare, scans, MRIs, and more. The ongoing support from the community is crucial in ensuring Aidan’s continued recovery and eventual return to the life he loves.
Zora Wegerif, a 22-year-old talented swimmer and part-time intern from Pretoria has qualified to represent South Africa in the Trisome Games 2024 – an international sporting event specifically for athletes with Down Syndrome. This prestigious competition is set to take place in Turkey from 19 – 26 March 2024, offering a platform for these exceptional athletes to showcase their talents on a global stage.
From early childhood, Zora’s affinity for water prompted her family to prioritize her safety through water safety classes. Independently swimming by the age of eight, Zora’s aquatic journey continued in South Africa with coach Tadhg Slattery and the Mandeville Dolphins Swim Club. Post-Covid lockdowns, she found a new home in the Swim4Life club, training rigorously four days a week.
Pictured above: Talented swimmer, Zora Wegerif
“Swimming has always been so important to Zora’s development. Because she has always competed and done well against swimmers with and without disabilities, swimming has been a space where she enters with confidence and determination to succeed.” says Marc, Zora’s dad.
Zora began competitively swimming in Tanzania, where her love for competitive swimming took root. Joining the Dar Swim Club, she became the only child with Down Syndrome in a group of diverse swimmers from different schools in Dar. Undeterred, Zora not only participated but excelled in swimming galas, fostering a love for the sport within an inclusive environment that pushed her to be the best version of herself.
Zora’s swimming prowess shone in national events, earning her two gold medals in the 2018 South Africa National Special Olympics qualifying gala and four bronze medals in the 2023 National Gala organized by the South African Sports Association for the Intellectually Impaired in Rustenburg. However, the path to the Trisome Games is marred by challenges stemming from the financial and administrative struggles of the official national association in South Africa.
Pictured above: Zora at her part-time internship at Kgololo Academy in Alexandra Township
“I am so excited to go to Turkey and I am working so hard to get strong for the games. I want to wear the South African colours proudly and wave our flag high.” says Zora excitedly.
Crowdfunding on BackaBuddy
Despite facing these hurdles, Zora’s commitment to her sport remains unyielding. To bridge the financial gap, Zora’s family launched a crowdfunding campaign on BackaBuddy, with a target of R35,925. The response from the community has been nothing short of heartwarming, with 32 donors contributing over R37,000, surpassing the initial goal.
Zora’s family extends heartfelt gratitude to all the donors who have played a crucial role in turning her dreams into reality. Their generosity not only covers the logistical and financial aspects of Zora’s journey to the Trisome Games but also advocates for inclusivity and equal opportunities in sports.
Pictured above: Zora and a teammate from her swim team
“To our friends, family, and strangers who have donated we are beyond grateful. So many who have donated have known Zora for all or most of her life and have witnessed her overcome challenges and rise above sometimes low expectations that are often based on prejudice and ignorance. We are so grateful for their friendship, support and love they have shown Zora”, the family concludes.
As Zora prepares to represent South Africa on the global stage, her story becomes a beacon of inspiration. It reminds us that, with unwavering support and determination, athletes like Zora can overcome challenges and compete on a level playing field. Your support has not only empowered Zora but also contributed to a narrative of triumph and inclusivity that resonates far beyond the pool.
Sané Wilken (18), a passionate cattle farm worker from Boshoff, Free State, experienced a traumatic event on January 25, 2024, which profoundly altered her life’s trajectory. While engaged in a routine task, pouring fertiliser into a motorised water tank, Sané’s thumb unexpectedly got caught and twisted in the bag she was using, leading to a catastrophic sequence of events.
Pictured above: Sané Wilken
Despite the immediate danger and her attempts to free herself, the machinery relentlessly twisted the bag around her thumb, eventually breaking her wrist, and ultimately resulting in the complete severance of her forearm.
While Sané says her life has been forever changed due to the traumatic incident, she is determined not to let her define her future. Showing remarkable strength of character, Sané told her mother, Corila, in the emergency room, “It’s only an arm. I’m still alive to speak to you, and this will not get me down.”
Pictured above: Sané with her mother, Corila
Crowdfunding on BackaBuddy
Since losing her arm, Sané is diligently working to adapt to her new circumstances. Her greatest challenges now stem from everyday tasks that she once performed effortlessly. Simple activities such as tying her hair in the morning, getting dressed, eating, and playing with her cherished dogs have become notably more difficult.
While doctors estimate that it could take 6 to 12 months for Sané’s arm to heal, her mother has initiated a crowdfunding campaign on BackaBuddy to purchase a state-of-the-art bionic arm for her. This advanced prosthetic, equipped with sensors that interpret muscle and brain signals, is intended to help Sané regain the confidence and independence she has lost.
Pictured above: Sané Wilken
Since the campaign’s launch, more than R80,000 has been donated towards her fundraising goal of R400,000, with contributions from 50 donors.
Having recently completed her agricultural education, Sané, who has dreamed of becoming the best farmer she could be since she was a little girl, is counting the days until she can return to the work that feeds her spirit, lovingly tending to the crops and cattle.
Reflecting on the accident, Sané says, “It was a freak accident. There was nothing anyone could’ve done differently. It’s no one’s fault. I’m not ashamed of my ‘stompie’ and will show anyone who wants to see my arm and tell my story.”
Thanking her donors, Sané says, “They have given me a second chance. I can’t say thank you enough for the kindness I have received. I’m taking life day by day now, but I know that one day soon, I will be able to live as I did before the accident.”
Monique Hayes, a vibrant 31-year-old mother of three from Marina da Gama – Muizenberg, was thrown into a whirlwind when a check-up in June 2023, led by the discovery of a lump in her groin, delivered devastating news. Initially diagnosed with a hernia, Monique underwent surgery only to discover she had an aggressive form of cancer—stage 4 anaplastic large cell lymphoma, which had spread to her liver.
Before the diagnosis, Monique’s life revolved around her family, filled with beach outings, road trips, and a bustling, independent lifestyle.
Image Caption: Monique Hayes with her family enjoying a pool day
However, the day of diagnosis shattered her world. Shocked and struggling to process the news, she grappled with anger and the existential question of “why me?” Reflecting on her journey, Monique expressed both the struggles and moments of joy amidst adversity.
She shared, “The emotional side of this journey has been a very long one with lots of ups and downs. My relationship with my loved ones was what kept me going.” Monique’s husband, his unwavering support, has been her rock throughout this challenging ordeal.
The treatment regimen has taken its toll, subjecting Monique to physical, emotional, and mental anguish.
She confessed, “The treatment has been torture.” However, her positivity to overcome shines through as she continues to fight for her life, motivated by the hope of a cancer-free future.
While facing limited community support, Monique draws strength from the love of her family and close friends. Witnessing her children’s happiness amidst her illness serves as a powerful motivator, underscoring the importance of love and support during tough times.
Despite the daunting diagnosis, Monique’s spirit remains unbroken.
She launched a crowdfunding campaign on BackaBuddy in January 2024 to cover the overwhelming medical expenses that accompany her treatment. With a fundraising target of R100,000, the campaign has already garnered momentum from generous donors.
Image caption: Monique Hayes at hospital receiving treatment.
“Your generous donations will not only aid in covering the overwhelming medical expenses but will also help alleviate the weight of the numerous other bills that have gone unpaid. Your support, no matter the amount, would be immensely appreciated. Thank you for considering contributing to my cause.” says Monique.
To support Monique, visit her BackaBuddy campaign link here:
Pictured above: Baby Leah Strydom
Pictured above: Baby Leah with her mum Mandy, dad Peet, and sister Mialeigh
Pictured above: A happy, baby Leah
Pictured above: Baby Leah at her first Christmas photo shoot with mum Mandy, dad Peet, and sister Mialeigh
Image above: Aidan Roos with his mum, Roeline
Image above: Aidan in hospital after the accident
Image above: Aidan in hospital after his operation
Pictured above: Talented swimmer, Zora Wegerif
Pictured above: Zora at her part-time internship at Kgololo Academy in Alexandra Township
Pictured above: Zora and a teammate from her swim team
