Every year on the last day of February, the world observes Rare Disease Day, a global initiative aimed at raising awareness about rare diseases and the challenges faced by those affected. In South Africa, this day serves as a poignant reminder of the importance of early diagnosis, research, and community support for individuals battling rare conditions.
Supporting the Community
With BackaBuddy being a platform to raise and support people living or battling rare diseases, many crowdfunding campaigns are actively supporting individuals facing rare diseases. Here are some campaigns that are currently raising funds:
Zeeya’s Battle Against Rare Disease
16-month-old Zeeya Moodley from Port Elizabeth is bravely battling an aggressive form of Meningococcal disease. Despite his young age, Zeeya shows incredible strength as he fights this rare, life-threatening condition. His community has come together, offering support and donations to help his family through this difficult time. The funds raised are being used for his medical treatments, hospital stays, and ongoing care.
Zeeya’s journey is a testament to resilience, and with your help, he can continue to fight.
7-year-old Joshua Louwrens’ battle with an aggressive form of cancer, Non-Hodgkin Lymphoma (NHL), has united many in the community to provide financial assistance for his treatment. The funds raised will go towards covering the cost of his chemotherapy, medical bills, and other essential treatments required for his recovery.
Kyle Skidmore’s (29) struggle with a rare genetic disorder has prompted his grandparents to start a crowdfunding campaign for his treatment. The funds raised will help cover the costs of specialized treatment, therapy, and medical interventions that are essential for improving Kyle’s health.
These campaigns not only provide financial relief but also foster a sense of community and shared responsibility.
Where to Seek Help in South Africa
If you or someone you know are dealing with a rare disease, here’s where you can find help and resources through a number of organizations dedicated to rare diseases:
Rare Diseases South Africa (RDSA): This organization provides support, advocacy, and information for individuals affected by rare diseases. They work to raise awareness, improve access to healthcare, and provide guidance on navigating the complexities of rare disease diagnoses and treatments. (Visit: www.rarediseases.co.za)
The South African Rare Disease Society (SARDS): Another key resource in South Africa, SARDS focuses on advocacy and community support for patients with rare conditions. They work on policies to improve care and increase research for rare diseases in South Africa. (Visit: www.sards.org.za)
The Department of Health: The South African government offers various resources through the Department of Health, which is involved in the coordination of healthcare services for rare disease patients. (Visit: www.health.gov.za)
The South African Human Genetics Society (SAHGS): This organization provides resources and support for genetic conditions, which are often at the heart of many rare diseases. They offer guidance on genetic testing and counseling. (Visit: www.sahgs.org.za)
By raising awareness, supporting ongoing research, and contributing to crowdfunding efforts, we can make a significant difference in the lives of those affected. Start a campaign on BackaBuddy to raise funds for your medical needs and help others facing similar challenges get the support they need.
A group of second-year Interior Design students from Nelson Mandela University (NMU) is stepping up to make a meaningful difference in their community. Driven by a deep desire to impact lives positively, these students have taken on the challenge of transforming the Protea Child & Youth Care Centre in Forest Hill, Gqeberha. This initiative reflects not just the students’ skills, but also the powerful spirit of Ubuntu, using one’s abilities and resources to support and uplift others.
The Protea Child & Youth Care Centre is home to children who have faced significant adversity, many of whom are orphaned or victims of heartbreaking circumstances. Understanding the importance of creating a welcoming and nurturing environment, the NMU students have been working diligently to design proposals aimed at revamping two key spaces within the centre. The goal is to provide a brighter, more uplifting atmosphere that will bring joy and comfort to the children who live there.
Charista, one of the students involved in the project, shares, “This initiative is an incredible opportunity for us aspiring designers to apply our skills in a way that positively impacts our local community while creating a space that the children can enjoy for years to come.” Her words reflect the passion and commitment driving the group as they move closer to executing their designs.
The project was officially started on Tuesday 25 February, with the next steps set for the practical phase, scheduled to take place from March 29 to April 6. The students are not only working hard to finalize their designs but are also seeking to raise R15,000 on their BackaBuddy crowdfunding campaign of which they have already raised R3000 with the help of 6 generous donors to bring their vision to life. This crowdfunding goal will support the purchase of materials and resources necessary to make the revamp a reality.
This project is a powerful example of how young people can make a tangible difference by using their talents and resources to contribute to the well-being of others. The collaborative effort to transform the centre is not only an exercise in design but also an embodiment of the true spirit of Ubuntu: lifting others up through selfless acts of kindness and community support.
The NMU Interior Design students are proving that even small acts of kindness can lead to monumental change. With their dedication and the community’s support, this project is set to leave a lasting impact on the children of Protea Child & Youth Care Centre, showing them that they are not alone and that there are people who care.
Little Zeeya Moodley, 16 months from Port Elizabeth, Eastern Cape has faced a battle that no child should ever have to endure. Born on September 18, 2023, Zeeya’s life was forever altered when a severe case of bacterial meningitis swiftly escalated into a rare and aggressive form of Meningococcal disease. The infection brought devastating complications, resulting in the loss of his fingers and feet and affecting his brain, vision, and heart.
Photo Caption: Zeeya in hospital
A Battle Beyond His Years
Admitted to the intensive care unit in October 2024, Zeeya has experienced multiple infections, organ failures, and three resuscitations. His young body endured challenging procedures and treatments that tested his limits. Along his journey, he encountered fierce battles with gangrene, infections of the heart and lungs, and a kidney infection that required dialysis. Today, his vital organs have stabilized, offering a glimpse of promise amid the daunting struggles he has faced.
Zeeya is cared for by his devoted parents, Shaakiera (30) and Shiraaz (33), along with an 8‑year‑old sister and a 4‑year‑old brother. Their lives were turned upside down as they watched their playful child become confined to a hospital bed.
“It has been incredibly difficult for our family to see Zeeya, once such a playful and happy child, now bedridden. His condition has taken a toll, with the loss of his feet and fingers, but we remain grateful for his strength and resilience in fighting through this,” says his mom, Shaakiera.
Photo Caption: Zeeya before the disease
Adding to the family’s heartache, Zeeya’s siblings have not seen him for the past four months. They often ask where their brother is.
“The adjustment to his new needs will be challenging for all of us, as we learn how to stimulate his brain and keep his muscles moving,” she shares.
Amid these trials, the community has rallied behind Zeeya and his family. In February 2025, his mother launched a crowdfunding campaign to help cover the mounting medical expenses. So far, 54 generous donors and offline donations have contributed R23,900 toward a target of R250,000. Every contribution goes directly toward easing medical bills, securing specialized rehabilitation, and funding long‑term home care that includes physical, occupational, and speech therapy.
Looking Ahead to a New Chapter
With Zeeya’s organs now stable, preparations are underway for his return home. Medical teams have supplied essential equipment like CPAP machines, and Shaakiera is undergoing training to provide the specialized care required after discharge. Although the road ahead remains long—with continuous therapy and the need for a full‑time home caregiver—the family holds onto optimism. They look forward to the day when Zeeya’s laughter once again fills their home.
Photo Caption: Zeeya before the disease
Each small step forward is celebrated. The family invites those who have encountered similar hardships to share advice and support. As they poignantly state,
“We are deeply grateful for the support we’ve received from BackaBuddy and the broader community during this challenging time. If anyone has gone through a similar experience, we would welcome hearing from you. Any assistance—whether it’s a hospital bed, a blood pressure monitor, or even basic supplies like nappies—would be deeply appreciated.”
The funds raised through his crowdfunding campaign will secure the medical care, therapies, and home support necessary for him to build a future filled with more smiles, laughter, and cherished moments.
To support Zeeya visit their BackaBuddy campaign link here:
For over a decade, Nick Hamman (33), a beloved 5FM radio presenter, has connected with audiences across South Africa. Now, he’s using his platform to champion an amazing cause – helping Thulasizwe School for Autism in Soweto build a kitchen and food technology classroom to empower students with autism.
“I’ve always believed in using my platform to make a difference. When I heard about the amazing work Thulasizwe School for Autism does to support children with unique needs, I knew it was something I wanted to be a part of. Education and inclusivity are issues close to my heart.” – Nick Hamman
Pictured above: 5 FM’s Nick Hamman
The Thulasizwe School for Autism, in association with Friends of Daniel, is the first autism-specific school in Soweto. Founded in 2016, the school provides education and essential support for 100 students aged 4 to 18. Despite their dedication, the school faces significant challenges, including the lack of a proper kitchen and classroom facilities for vocational training. Currently, meals are prepared in a makeshift kitchen, and students eager to learn culinary skills have had to travel to external facilities, an arrangement that is no longer sustainable.
To further develop the students’ talents and promote their independence, the school urgently requires two vital facilities:
A Fully Equipped Kitchen: To provide nutritious meals for students and sustain the school’s feeding program year-round.
A Food Technology Classroom: To teach essential life skills, instill independence, and provide students with hands-on training in food preparation.
Pictured above: The kitchen that the students are currently utilizing
Beyond serving the school, these facilities will double as a bakery, benefiting the local community by creating job opportunities, fostering entrepreneurship, and generating much-needed revenue for the school’s sustainability.
This initiative is proudly supported by Friends of Daniel, an organization inspired by Daniel Sayed (15), a talented young boy on the autism spectrum. Daniel’s unique perspective and artistic skills have been a profound source of inspiration. Recognizing his gifts and the challenges faced by autistic individuals, Daniel’s family envisioned creating something meaningful to celebrate neurodiversity and offer support to others on a similar journey.
Pictured above: Nick and Daniel Sayed
Through Daniel’s creativity and the family’s passion, Friends of Daniel seeks to inspire understanding, celebrate abilities, and provide a network of support for autistic individuals and their families. Since January 2022, Friends of Daniel has worked hand in hand with Thulasizwe School for Autism, fostering inclusivity and empowering the next generation.
Crowdfunding on BackaBuddy
To help the Thulasizwe School build these new facilities, a BackaBuddy crowdfunding campaign has been created where they have already raised over R116 000 with the help of 50 incredible donors.
“This campaign is about giving children with autism the chance to thrive in environments where they feel safe, understood, and empowered. I’ve seen how a little support can create incredible opportunities for those who face challenges. This is about trying to level the playing field and making sure every child has a shot at success.” – Nick
SuperSportBet Doubles Your Impact
To maximize the impact of this initiative, SuperSportBet has pledged to match all donations, rand for rand, up to R500,000. Every contribution will go twice as far in helping these students gain independence and real-world skills.
If the campaign’s fundraising goal is not fully met, donations will still be put to good use – funding school improvements such as the renovation of play areas, the purchase of essential learning materials, and the development of a sensory room to better support students’ needs.
“Every contribution, no matter how small, has the potential to create massive change. By supporting this campaign, you’re not just donating money—you’re investing in brighter futures for these children and their communities. Let’s show the power of collective kindness and make a difference together!” – Nick
Luke Jones, a 25-year-old aspiring animator from Johannesburg, has spent the past four years living in Cape Town, studying Computer Game Design at Vega University. Diagnosed with autism at the tender age of two, Luke’s journey has been one of resilience, determination, and more recently, a desire to make the world a more inclusive place for neurodiverse individuals. Given his challenge to find suitable employment, Luke is channeling his passion for animation into an ambitious project that aims to bridge the gap between neurodiverse and neurotypical worlds.
Image above: Luke Jones working on his first planned short film, Tim’s First Day at Work
Growing up, Luke faced challenges that many neurodiverse individuals can relate to. “I had trouble regulating my emotions back then, so there were lots of emotional outbursts,” he recalls. His early years were shaped by the unwavering support of his family, including his parents Gavin (60) and Bonita (60), brother Simon (27), and a team of dedicated therapists and facilitators who have helped Luke navigate the complexities of the schoolyard, regulate his emotions, and overcome developmental delays through intensive therapy.
Despite these challenges, Luke’s hard work paid off. He successfully completed his university degree and is now using his experiences to inspire a groundbreaking project: a series of animated short films designed to help neurodiverse individuals navigate everyday situations while fostering greater understanding among neurotypical audiences.
Image above: Luke with his family, brother Simon, mom Bonita, and dad Gavin, at Kruger National Park
The first planned short film in the series, Tim’s First Day at Work, will explore the challenges a neurodiverse employee might face in a typical office environment. By depicting relatable scenarios such as Tim’s first visit to the doctor, his first date, and even his first haircut, the series aims to give the rules of the game to neurodiverse individuals while educating neurotypical viewers about the unique experiences of those on the autistic spectrum.
“Animation is a medium that’s easy to understand in a literal and direct way,” Luke explains. “Sometimes I may miss subtle communication cues in real life, but animated work can make these subtleties very clear, and I know others like me would appreciate it as well.”
The ultimate goal of the series is to promote empathy, understanding, and inclusion in schools, workplaces, and public spaces. Luke envisions these resources being used by educators, HR professionals, social workers, and other facilitators to create environments where neurodiverse people feel seen, heard, and supported.
Through this initiative, Luke hopes to spark change. “I would like to see a society that celebrates neurodiversity and creates circumstances in which everyone feels appreciated, supported, and included,” he shares.
To bring his vision to life, Luke has launched a crowdfunding campaign on BackaBuddy where he has already raised over R28 000 with the help of 14 incredible donors. The funds will cover essential production costs, including storyboarding, animation, voice work, and distribution, as well as securing professional guidance from professional consultants that specialise in neurodiverse interventions to ensure the accuracy and authenticity of the project. These educational guides will provide practical advice and conversation starters for teachers, parents, and employers. Importantly, Luke has made it clear that none of the funds will be used for his personal needs; every cent will go directly toward creating these impactful resources.
Image above: Luke at his university graduation
“Thank you all so much. Your contribution to this project will make a big difference in the lives of neurodivergent people. My hope is that your donations will enable the right people to create resources that promote greater understanding, empathy, and inclusion in schools, workplaces, and other public spaces. These animated videos will help to bridge knowledge gaps between neurotypical and neurodivergent and to foster a more supportive, caring society in which everyone, regardless of neuro-classification, may thrive. You are an important part of this journey. Your dedication to assisting others is genuinely changing the world for the better and I salute you.” Luke says.
Social Media Manager at BackaBuddy, Bernelie Barwise (32), is a Cape Town-based performer, musician, and fire artist whose talents shine as brightly as the flames she wields. This Saturday, 6 December, she will be lighting up Franschhoek Square with an unforgettable fusion of music and fire artistry.
With an impressive performance portfolio, Bernelie has dazzled audiences across the globe, including in Abu Dhabi, the UK, Tanzania, Zanzibar, and throughout South Africa, with notable appearances in Cape Town, Johannesburg, and Durban. Her captivating performances seamlessly blend live music and visual artistry, incorporating keyboard, guitar, looping beats, synths, and powerful vocals, all enhanced by breathtaking fire shows.
Pictured above: Bernelie Barwise at a fire show in Afrikanos in 2021
“I first started singing from a young age and did the Eisteddfod where I won categories in both singing classical contemporary music and poetry. From there I learned to play the piano by ear as I was too stubborn to learn theory,” says Bernelie
Recently, Bernelie delivered a fiery stage performance at the Ostrich Ranch, sharing the spotlight with renowned South African band MiCasa, and showcased her live electronic music in an exclusive rooftop show atop the Media24 building. Her artistry and unique style have been spotlighted by Texx and the City, particularly for her music that promotes themes of body positivity and self-love.
Pictured above: Bernelie with South African artist MiCasa at the Ostrich Ranch in Cape Town
Bernelie has released two albums, with plans to re-release them in early 2025. Her most recent album, Zenith, is currently available exclusively on Bandcamp, and her visually stunning music video, filmed in Abu Dhabi, exemplifies her creative vision.
“I recorded my first album when I was 16 and then at 24, my first official album ‘Mystic’ was launched on all major digital platforms and one of the singles from the album ‘Little Mess’ got played on 5FM. I then went on to play at many well known venues in Cape Town like the Mojo Market, Grand West, Mercury, The Mining Indaba at the Arabella Sheraton Hotel and Hirsh’s Women in Business Awards in Century City. Shortly after, my guitarist and I had a video that went viral on Facebook and we got a contract to go play in Abu Dhabi for 5 months. After returning from the UAE, I released another album, ‘Zenith’ produced by Marius de Beer (32) during Covid. Covid definitely threw a spanner in the works as many projects got put on hold,” Bernelie tell us
This Saturday, 6 December, Bernelie will bring her extraordinary mix of music and fire artistry to Franschhoek Square, promising audiences an unforgettable fusion of sound and spectacle.
Pictured above: Bernelie performing at Media24 for the launch of new Nokia products
“Living and performing in different countries is an absolute privilege. It was also hard work and sometimes came with its challenges as I fell very sick in Zanzibar after getting Malaria,” Bernelie explains
Offstage, Bernelie serves as an ambassador for Panthera Africa Big Cat Sanctuary, a safe haven for rescued big cats. She passionately supports their BackaBuddy campaign, which raises funds to provide food and veterinary care for these majestic animals. So far, the campaign has raised R2,000 of its R200,000 goal, with every contribution bringing them closer to ensuring the well-being of these incredible creatures.
Pictured above: Bernelie at Panthera Africa
“I support the amazing Big Cat Sanctuary, Panthera Africa, because I am a huge animal lover and very much into nature conservation. My motivation to support comes from my love for rescuing animals and my cat, Mitsu, was rescued after being found in a bin in Manenberg and very close to death. This sparked my interest in saving other animals in need and I have always been a big cat lover!” Bernelie says
Whether she’s performing with fire, creating music, or championing meaningful causes, Bernelie’s work embodies her dedication to creativity, connection, and making a difference.
