One-year-old with uncontrollable epilepsy needs urgent help

One-year-old with uncontrollable epilepsy needs urgent help

Jasmijn Duvenhage, a little one-year-old girl from Die Wilgers, Pretoria, was diagnosed with temporal lobe epilepsy at only 4 months old, after several tests, including an EEG test that measures electrical activity in the brain. 

Jasmijn has a rare genetic condition that causes difficulty to control, severe epilepsy, slow development, and low muscle tone. 

After starting therapy for temporal lobe epilepsy, Jasmijn’s condition unfortunately worsened, and she was diagnosed with West syndrome, for which she had received a prolonged course of extremely expensive steroid therapy. 

This was not covered by the family’s medical aid in 2021. 

“By Jesus’ Mercy and Grace, she came out of West syndrome, a miracle that very few children live to tell about. Unfortunately, Jasmijn developed several forms of horrifying epilepsy ranging from mild episodes to absolutely life-threatening episodes. This happened several times a day.”

Nadia, Jasmijn’s mom, has not been able to trust Jasmijn’s care into the hands of another healthcare provider yet, as Jasmijn has an extremely complex medication and feeding regime, including the ketogenic diet, which can be 100% life-threatening if administered incorrectly. 

Nadia thus forms part of Jasmijn’s therapeutic team and had to stop working in order to be available for her daughter’s care. This places additional financial strain on the family.

To date, Jasmijn has feeble muscle tone, she cannot sit up, turn over, or crawl. She also has trouble moving her head, which necessitates 24-hour monitoring as she also has trouble swallowing her secretions, which has led to several choking episodes with aspiration pneumonia and lung collapses, requiring non-invasive ventilation and admission to paediatric ICU.

This is all even despite the family’s best attempts to manage and prevent these episodes with physiotherapy and suctioning at home. With her severe developmental delays, she doesn’t yet smile and does not always react to people around her.

To give Jasmijn the best care, her family has spent their entire savings and exhausted their medical aid to cover the costs of her medication and purchases such as a wheelchair, bathing equipment, anti-epileptic drugs, rehab sessions, hypoallergenic baby formula and now the ketogenic diet, as well as a special needs car seat.

The parents are praying that with the Lord’s continual Mercy and Grace, as well as the right therapy, Jasmijn will still have a chance at a normal life.  

Uncontrolled epilepsy remains the problem: every time she has a seizure, it may damage her brain and delay her development further.  She is currently on 5 anti-epileptic drugs (amongst others) but her epilepsy is still not under control. The family is doing everything they can to ensure the best possible outcome for Jasmijn.

In need of urgent financial assistance to help Jasmijn with her medical condition, the Duvenhage family have launched a crowdfunding campaign on BackaBuddy to appeal to the public for much-needed support. 

Since June 2022, Jasmijn has also been in and out of several paediatric ICUs, battling various infections, due to her poor immune system. This brave little girl even had to spend Christmas 2022 and new year 2023 in the paediatric ICU.  

The parents and doctors are hoping to get her home soon though. Currently, she is receiving 24-hour continuous feeds and will have to be managed on non-invasive ventilation at home until her muscle tone improves enough for her to breathe well on her own. 

To date, approximately R111 000 has been raised from 47 incredible donors, towards their fundraising target of R250 000 

“We are doing everything we can do to make sure that Jasmijn gets the correct medical care. All contributions towards our BackaBuddy campaign will be used to ensure that Jasmijn receives the best therapy. “

Please help give Jasmijn a better fighting chance to live a more victorious life with her loved ones.

Support Jasmijn by donating to her campaign:

https://www.backabuddy.co.za/jasmijn-duvenhage

Alternatively, donate via Snapscan

https://pos.snapscan.io/qr/JasmijnDuvenhage 

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R380 Million.

 

Job listing at BackaBuddy: Verification Officer

Job listing at BackaBuddy: Verification Officer

BackaBuddy is South Africa’s leading online donations-based platform. They are looking for an enthusiastic, flexible and compassionate Verification Officer to join them in their friendly team.

Position Objective:

Position: Verification Officer
Reports to: COO
Location: Cape Town CBD (flexible remote working)
Work hours: Monday – Friday, 8 am to 5 pm
Salary: Market-related
Employment type: 4 months contract with the option to go permanent
Start date: ASAP

Primary Responsibilities and Duties:

  • Provide high-quality email and phone support to customers and other stakeholders to ensure fundraiser authenticity and safe delivery of funds for beneficiaries. 
  • Proactively vet fundraisers and interpret fundraiser content in accordance with the BackaBuddy Terms of Service, in addition to staying up-to-date on the latest trends and assisting with evaluating policy. 
  • Manage banking details collection from the beneficiaries and ensure that the Finance team have the correct information to payout funds owed according to strict timelines.
  • Manage ad-hoc payment requests/donor refund requests received from beneficiaries.
  • Respond to and investigate reports a fundraiser queries.
  • Work with the customer service, marketing and finance teams, and others to ensure fundraisers on BackaBuddy are legitimate and donations are delivered to the correct parties.
  • Field questions and vet fundraisers for the Communities team, collaboratively work with all teams on a regular basis and in emergencies and become an expert in quickly resolving complicated issues through email, phone, and messaging software (Zoho Desk ticketing programme). 
  • Identify trends, handle escalations, and ensure safe delivery of funds for beneficiaries.
  • Develop a deep understanding of trust-related issues and a willingness to experiment with bold, novel solutions.
  • Consistently improve and enhance our internal processes and systems.
  • Interpret data, analyze results, and create risk models, and bring that perspective to the team.  
  • Provide invaluable feedback to our Dev Team to build Trust & Safety into the BackaBuddy platform.

 

Requirements:

  • Exemplify BackaBuddy’s core values (performance, accountability, effectiveness) and embody company and team culture
  • Are a consistent high-performer in metrics
  • Are an effective problem solver: spots issues or efficiency gains and brings solutions forward
  • Exude strong leadership skills
  • Able to think critically and be a fast learner
  • Display natural ability to “think big” and take initiative
  • Understand and help guide the vision of the company and team 
  • See every interaction as a chance to build rapport and strengthen the public perception of BackaBuddy
  • Are comfortable engaging with industry leaders
  • Adaptable in a fast-paced work environment
  • Must have own laptop and stable internet connection

To apply:

Please submit a cover letter, resume, and salary requirements to: [email protected]. Only those whose applications are being considered will be contacted. No phone calls, please.

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R380 Million.

Talented Actor Lebohang Ntsane seeks support for postgrad studies at prestigious Rhodes University

Talented Actor Lebohang Ntsane seeks support for postgrad studies at prestigious Rhodes University

Lebohang Ntsane, a talented 24-year-old from Lesotho who captured the hearts of many as a child actor in the 2013 film The Forgotten Kingdom, will be moving to Makhanda, Grahamstown, this year to pursue his postgraduate studies in Theatre.

Lebohang has been accepted into the highly sought-after Honours program at Rhodes University in South Africa, a prestigious institution known for its excellent theatre and performance faculties. 

Picture above: A still from the 2013 Lesotho-based feature film The Forgotten Kingdom.

He is deeply passionate about acting and hopes to use his craft to put his home country of Lesotho on the map.

Tragically, Lebohang lost both of his parents at a young age and has had to work his way up from a humble background through his acting career. 

In 2014, he won the Best Child Actor award at the African Movie Academy Awards for his role in The Forgotten Kingdom. 

Picture above: Lebohang in a scene from The Forgotten Kingdom. He won the award for Best Child Actor at the 2014 African Movie Academy Awards in recognition of his role in the film.

Since then, he has continued to build his acting experience through short films and commercials and has completed a Bachelor of Arts degree in Theatre and English at the National University of Lesotho.

As a result of his hard work, Lebohang has been given the chance to further his education and pursue his dreams through acceptance into Rhodes University. 

Picture above: Lebohang is now 24 years old and looking to further his postgraduate studies and professional acting career.

To help realise his dream, Lebohang has launched a campaign on crowdfunding platform, BackaBuddy appealing to the public to provide him with the financial means to cover tuition and living expenses for this incredible opportunity. 

Since the launch of his campaign, Lebohang has raised over R42 000 from donors worldwide contributing to his goal of R150 000.

“This fundraising campaign has assisted me immensely. It has done for me in a few weeks what I would not have done in a year. I am so grateful to everyone who has lent a helping hand. This really means a lot to me.”- says Lebohang

Picture above: In his thank you message to his fundraising campaign supporters, Lebohang writes: “This donation is a blessing and your love and generosity are greatly valued. I promise to do my best in studying hard to make you proud.”

Lebohang is a hardworking and talented young man who deserves the chance to succeed and create a bright future for himself.

Support Lebohang by donating to his campaign:

https://www.backabuddy.co.za/champion/project/lebohang-ntsane-5474377365017934424

Alternatively, donate via Snapscan:

https://pos.snapscan.io/qr/Lebohang_Ntsane 

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R380 Million.

 

BackaBuddy Thanks Compassionate Donors for Raising Almost R80 Million in 2022

BackaBuddy Thanks Compassionate Donors for Raising Almost R80 Million in 2022

We had an incredible year in 2022 in terms of raising funds for various worthy causes.

According to our annual statistics released by the organization, we raised a staggering R79 million (about $5.4 million) in 2022 alone, and have raised a total of R378 million (about $25.5 million) since our inception.

One of the standout campaigns on our platform in 2022 was the Hope for Kyleigh campaign, which aimed to raise funds for a young girl from Gauteng to receive life-saving heart surgery in the US.

Kyleigh Kista, from Benoni, was born with a complex congenital heart defect that required a specialized procedure at Boston Children’s Hospital.

Thanks to the generosity of donors, both locally and abroad, the campaign was able to raise an astounding R4 million, both online and offline.

In March, Kyleigh underwent a cardiac catheterization procedure in which her arteries were widened with a balloon, a stent was placed, and the dual supply was repaired. The procedure was a complete success and Kyleigh recovered quickly.

Another campaign that received an overwhelming amount of support on our platform was one to fund a diabetic alert dog for two-year-old, Jenna-Mae van der Vyver, from Krugersdorp.

Diabetic alert dogs are trained to recognize when their owner’s blood sugar levels are getting too high or too low, and can alert them or their caregivers in time for them to take appropriate action.

These dogs can be expensive, with costs ranging from R30,000 to R60,000. Thanks to the kindness and generosity of strangers, the campaign exceeded its target, ensuring that the young girl could bring her forever-companion home.

Internet celebrity Vernon Koekemoer, also known as “SA’s Chuck Norris,” was the beneficiary of another successful campaign on our platform. Koekemoer became an instant celebrity in 2008 after a photograph of him taken at an H20 party went viral, but he has since faced a number of health complications due to three failed hip operations.

South Africans were quick to respond to the campaign, donating more than R100,000 to cover the costs of Koekemoer’s medical treatment and comprehensive care.

In total, we raised over R13 million in 2022 compared to 2021, with over 13,500 campaigns being created on the platform. This represents a 17% increase in campaigns year-on-year. Most of these campaigns were related to funding medical procedures and sporting events.

Our CEO Patrick Schofield attributed the success of the platform to the fact that people became more compassionate and aware of the struggles of others due to the pandemic, and were more willing to give in various ways.

Surveys of our donors showed that many people were interested in donating not just their money, but also their time and skills to support causes that they were passionate about.

The stories of Kyleigh, Jenna-Mae, and Vernon Koekemoer are just a few examples of the many heartwarming campaigns that were made possible through the generosity and kindness of our donors.

It’s truly inspiring to see how people could come together to make a positive impact in the world and help those in need.

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R370 Million.

 

 

After Black Friday, Comes #GivingTuesdaySA.

After Black Friday, Comes #GivingTuesdaySA.

On 29 November 2022, following the widely recognised shopping events Black Friday & Cyber Monday, #GivingTuesday kicks off the charitable season when many individuals are inspired to give back to a worthy cause. 

Harnessing the power of social media & collaboration, #GivingTuesdaySA encourages individuals and non-profits alike to reach out to their communities, with the aim of creating meaningful social change and spreading goodwill.

Join BackaBuddy in celebrating #GivingTuesdaySA

Here are a few charities in need of support: 

 

Help Save RX Radio 

A beloved and award-winning children’s radio station, RX Radio, hosted at Red Cross War Memorial Children’s Hospital which is presented by and for children with life-threatening illnesses, may soon close without public support.

With your donation, RX Radio can continue the wonderful work they do and keep the radio station on the air. All donors are eligible for a Section 18A tax certificate issued by RX Radio.

Support RX Radio on BackaBuddy, here. Read more.

VulPro Christmas Appeal

VulPro is a world-renowned and well-recognized vulture conservation organization which currently houses the largest captive population of non-releasable Cape vultures in the world and is the only vulture conservation organization of its kind in Africa. 

To thank their wonderful employees for the tireless work they’ve contributed this year, VulPro has launched a Christmas campaign on BackaBuddy to help repair their staff accommodation bathroom. 

Support VulPro on BackaBuddy, here.

 

Transkei Animal Welfare Initiative

The Transkei Animal Welfare Initiative, a small NPO in the former Transkei area providing primary animal health care to companion animals in one of the most rural areas in South Africa, is bringing festive cheer to Port St. Johns this Christmas by sending a veteran to assist the community in preventing unwanted breeding and puppy de-worming.

As part of their efforts to control the animal population on the streets, they’ve launched a BackaBuddy campaign to raise the necessary funds to help them on their mission. 

Support the Transkei Animal Welfare Initiative on BackaBuddy, here

Animal Antics Pet Rescue

Founded in 2018, Animal Antics has helped house over 150 dogs and numerous cats as well as operate an animal feeding program in Mandela Valley. This Christmas, the organisation is on a mission to help the communities around them feed their Animals.

Any donation, no matter how small, will help manage the influx of calls for help and animals that will be needing help over this festive season.

Support Animal Antics on BackaBuddy, here.

 

St Helena Sandveld Hospice

The St Helena Sandveld Hospice needs to raise an additional R10 000 in December to help fund a replacement vehicle for their dedicated nurses to visit their patients in their homes. The hospice visits approximately 65 patients a month, none of whom are obliged to pay for this care.

Support the St Helena Sandveld Hospice on BackaBuddy, here

 

Here’s how you can also get involved:

  • Donate to a cause you’re passionate about by visiting BackaBuddy.co.za.
  • Crowdfunding campaigns are 350% more likely to be successful if shared on social media, visit BackaBuddy on Facebook and help create awareness for a campaign that inspires you! Don’t forget to hashtag #GivingTuesdaySA.
  • If you’re a non-profit or community organisation, register on BackaBuddy to raise funds for various needs you might have on #GivingTuesday!
  • Individuals are also encouraged to create a crowdfunding campaign to support their favourite charity on #GivingTuesdaySA. Set your fundraising target, share your personal story and introduce your cause to your networks!

Whether you dedicate #GivingTuesday to helping a neighbour or stranger out, volunteer your time or donate funds to a good cause, every act of generosity counts!

Learn more about #GivingTuesdaySA on their website or email [email protected].

Follow Giving Tuesday on social media: @GivingTuesdaySA

 Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R360 Million.