Born with 3 Congenital Heart Defects, 8-month-old Liané needs Life-saving surgery

Born with 3 Congenital Heart Defects, 8-month-old Liané needs Life-saving surgery

Pictured above: Ashley and her daughter, Liané

Since the start of her life, 8-month old, Liané Roux from Secunda, Mpumalanga has faced a number of serious health issues as a result of being born with 3 congenital heart defects.

Concerned that their daughter (who was 4 months old at the time) was showing signs of a fever, had difficulty breathing, and was tired all the time, dotting parents Ashley (26) and Quintin Roux (36), took her to their local hospital, where she was initially diagnosed with a Grade 5 Cardiac Systolic Murmur.

A week later, after seeing a heart specialist at Steve Biko hospital, the family learned that Liané’s condition was much greater anticipated, discovering that she was born with 3 congenital heart defects: VSD, DORV and TGA.

 

Liané’s condition in more detail:

  • Ventricular septal defect (VSD), a hole in the heart, is a common heart defect that’s present at birth. The hole (defect) occurs in the wall (septum) that separates the heart’s lower chambers (ventricles) and allows blood to pass from the left to the right side of the heart. The oxygen-rich blood then gets pumped back to the lungs instead of out to the body, causing the heart to work harder. Source.
  • Double-outlet right ventricle, occurs when two large blood vessels don’t connect to the heart normally. In infants born with this condition, the main artery that carries blood from the heart to the body (aorta) and the artery that directs blood from the heart to the lungs (pulmonary artery) connect partially or completely to the right lower heart chamber (ventricle). Sometimes these blood vessels are also reversed from their normal positions. Source.
  • Transposition of the great arteries (TGA), is a serious, rare heart problem in which the two main arteries leaving the heart are reversed (transposed). Source.

 

 

In urgent need of an expensive surgery

As a result of her condition, Liané is at high risk of getting respiratory infections and ultimately suffering heart failure. 

After meeting with the Maboneng Heart and Lung Institute in Johannesburg, the only hospital willing to perform Liané’s surgery, the Roux family were distraught, realising that between R800 000 to R1 Million rand is needed to save their daughter’s life.

Proud parents Ashley and Quintin holding Liané

Reaching out to the public for support during this devastating time, the family has launched a crowdfunding campaign on BackaBuddy, to make up the astronomical cost of the surgery, as they don’t have medical aid.

Grateful for the supporters who have shared their appeal and made generous donations to the sum of R94 000, the Roux family are ‘counting the days’ until Liané can put her difficult first chapter behind her.

“Words cannot describe the level of fear and heartbreak we felt hearing the words ‘heart failure’, knowing we have a financial mountain to climb and a race against time, to save the life of our little angel. We couldn’t be more thankful for the community that has formed around us to help fix Liané’s heart” – says Quintin

An update 8th April 2022: 

Liané is at home on oxygen after she landed in hospital again. We are raising against time as she needs the operation as soon as possible.

Support Liané by making a donation on BackaBuddy:

https://www.backabuddy.co.za/liane-roux

Alternatively, make a donation via Snapscan:

https://pos.snapscan.io/qr/LianeRoux

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far raised over R260 Million.

Durban Dancer and Choreographer to showcase South African talent on a global stage

Durban Dancer and Choreographer to showcase South African talent on a global stage

Thobile Maphanga, a dance practitioner, producer, creative collaborator, and writer from Durban, Kwa-Zulu Natal, has been invited to represent South Africa at the prestigious Atelier for Young Festival Managers in Canada in June 2022. 

The Festival Academy offers professional development and leadership training to festival makers globally as an initiative of the European Festivals Association (EFA). 

Thobile will be one of only 35 participants globally to attend this amazing opportunity.

She will be participating in a seven-day training program for like-minded young artists who are interested in becoming festival directors, working in programming or related departments at a festival.

 

 

“I see the role of artists, cultural spaces, and festivals to be more vital now than ever and I am passionate about amplifying voices that have been othered and silenced.” 

 

“I believe through festival platforms we can do this more frequently and effectively. I am eager to create spaces where people can commune and exchange ideas, thoughts, and provocations in a respectful manner & where diverse voices can be heard” says Thobile.

Thobile believes that her role as a mentee and choreographer for the Jomba Festival at the University of KwaZulu Natal (UKZN) has prepared her for the spotlight on the international stage.

To be able to attend the prestigious Atelier for Young Festival Managers event, Thobile has launched a crowdfunding campaign on BackaBuddy, appealing to the arts community as she opens the doors for other local talents.

 

Since the launch of the campaign to cover her travel and related expenses, over R70 000 has been raised which exceeded her target, with the support of over 59 donors sending applause and well-wishes.

“By contributing to this fund, you are assisting not only my personal growth but helping our community to remain relevant, connected, and ever-growing through sustainable practices. I am exceedingly proud to be representing South Africa on this global stage ” says Thobile.

Make a donation to support Thobile’s dream:

https://www.backabuddy.co.za/champion/project/thobile-maphanga

Alternatively, make a donation via Snapscan:

https://pos.snapscan.io/qr/ThobileMaphanga

 

Messages of encouragement come pouring in for Thobile: 

“All the best on this adventure. I will be watching from afar. I know only great things are coming your way. This is the start. Lots of love Sarah.” – Sarah Herd

“You are so inspiring, your thoughtful and creative energy impacts us all. –  Osmosiiza

“Best wishes with this campaign, Thobile. You deserve this wonderful opportunity.” – Ismail Mahomed

“So proud of you, Thobs, a special person who has inspired me through our collective writing journeys.”  – Tammy Ballantyne Webber

 

‘Umntu Ngumntu Ngabantu’

“From the moment I started this campaign I have been deeply moved and overwhelmed by the support that I have gotten from friends, family and strangers from across the globe. I am truly humbled by your generosity and love, and wish you all blessings in abundance.

 

In isiZulu we say ‘Makwande’ meaning ‘May it multiply’. May the blessings and gifts you have shown me multiply in you and overflow to all those who, like me, may need them”, says Thobile

 

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far raised over R260 Million.

Generous Support Brings SA Teacher Home From Vietnam

Generous Support Brings SA Teacher Home From Vietnam

Dale Benson (39), an educator from Cape Town, South Africa, who had been teaching English in Vietnam, arrived safely home on the 15th of July after receiving the devastating news that he is dying of stage 4 cancer.

Time was of the essence

After experiencing severe stomach pains for a couple weeks, Dale was rushed to hospital on Friday, 2 July 2021 for an emergency operation, when doctors found cancer in the whole of his abdominal area.

Without medical aid, Dale, who was in ‘bad shape and in a lot of pain’, was being treated at the University hospital in Hanoi. The doctors had estimated that he had about one month to live without chemotherapy

The race to get Dale home

As Dale’s mother, Inge Bosman, was unable to fly to Vietnam, due to their borders being closed because of the pandemic, the family made arrangements to have Dale airlifted out of the country with a medical plane, which estimated to cost an astronomical amount.

Dale in high spirits as he arrivals home in South Africa.

“It’s difficult to express the exact emotions I am feeling in words, to be able to thank each person for their generosity towards me. Even though we are experiencing a global pandemic and every penny counts these days, all of you without hesitation came forward to donate to my cause. I will never be able to thank you enough. I truly hope one day in whatever life it may be that I can be there for you. I am going to fight this disease with every piece of strength I have. Warrior mode activated. Love you all to the moon and back.” _ says Dale.

To assist the family with funds to cover the cost of the trip, and get Dale the best possible medical care on South African soil, a friend of the family, Karen Baschiera, launched a crowdfunding campaign on BackaBuddy to appeal to the public for support.

Since the launch of the campaign on 6 July 2021, over R209 000 has been raised through generous contributions from 459 donors. 

“I am overwhelmed by the financial and emotional support from each and every person that commented..Has put me in a such a loved space” – says Inge.

Support Dale’s cause by donating to his BackaBuddy campaign here:

https://www.backabuddy.co.za/dale-benson

Alternatively, make a donation via Snapscan:

https://pos.snapscan.io/qr/dale-benson

Manning up to cancer: A Message from Dale (17 FEB 2022)

“I am currently busy with my 8th round of chemo. At the end of this month, I will be given a 3-month break from it and continue again in May. The first scan I had a few months ago showed that the chemo was able to dry up the ascites fluid which was causing so many problems for me. I was hardly able to eat and my health was declining rapidly. I was admitted to hospice for them to monitor me. After spending 3 days there I managed to somehow get well enough to be discharged. It was then my chemo journey started and after a month or 2, I was feeling so much better.

The chemo of course has its own side effects but staying positive and managing the effects makes it tolerable. I have changed my diet and unfortunately had to cut out things (sugar) which is not easy but definitely helping with my success of beating this illness. So it’s been around 8 months and today. I am feeling strong”, says Dale.

 

 

Thank you to the 459 incredible donors who supported Inge in bringing her son, Dale, Home From Vietnam

I wake up each day grateful to start a new day with a smile on my face and a warrior spirit in my heart. Every day I also think of all the wonderful humans that helped me get to where I am today. I am going to continue fighting whilst living the best life I can live. My next scan will be in a few months and I will then be able to see how the treatment is going. Will update you all again then. ❤️ – says Dale

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far raised over R260 Million.

‘Diabetic Alert Dog’ will manage 2-year-old Jenna-Mae’s insulin levels as they rise & fall

‘Diabetic Alert Dog’ will manage 2-year-old Jenna-Mae’s insulin levels as they rise & fall

In September 2021, Jenna-Mae van der Vyver, an ‘exceptionally smart and compassionate’ 2-year-old girl from Krugersdorp, Johannesburg, was diagnosed with Diabetes Type 1, an auto-immune condition, which typically appears during adolescence.

As Type 1 diabetes is not lifestyle or diet-related, being insulin-dependent will be a lifelong struggle for Jenna-Mae.

While in the ‘honeymoon phase’ as doctors coin it, Jenna-Mae’s insulin levels are erratic and hard to predict, resulting in many sleepless nights for her parents, Cherise (38) and Johan (47), who are worried that one day she might not make it through the night.

“Nothing is as scary as sleeping at night, hoping & praying she won’t go low, fall into a coma, and you won’t hear your alarm for her nightly midnight, 2 am and 4 am checks. Or, when you drive back from the shops (just 5 minutes) and you reach home to an unresponsive, unreactive child in the back seat… even though you checked her insulin levels 5 minutes ago… you shake her, scream at her to wake up and try to shove something sugary in her mouth without choking her… not cool mense, not cool.” – says Cherise

Jenna-Mae, with her mom Cherise and dad Johan.

Jenna-Mae handles her condition with understanding and bravery, taking pokes and pricks and injections with a determined attitude, and generally without complaint, according to her mum.

“When her insulin levels are high she is overly busy and unfocused but understands that she is unable to eat sugar or carbs as it will make her feel sick. When she is low she can be very tearful, emotional, tired, and clingy, but she will often tell us to grab her a Super C to bring her levels up” says Cherise

Jenna-Mae playing dress-up / Cherise Brady Photography

 

Found: A dog to join the pack

As Jenna-Mae is so little, and can’t always communicate to her parents how she is feeling, her parents found the perfect solution, in the form of a Diabetic Alert Dog.

Incredibly, Diabetic Alert Dogs can detect high or low insulin levels, using their keen sense of smell, up to 20 minutes before devices can.

To purchase a ‘paramedic pup’ and cover his/her food and medical needs over the next 12 months while in training, the van der Vyver family launched a crowdfunding campaign on Backabuddy, which exceeded its target by reaching over R65 000 kind donations from 67 donors.

 

Update: Puppy Training has kicked off

Thefunds raised have been paid directly to Honey’s Guide Dogs, a non-profit organisation based in Cape Town which does a phenomenal job of selecting, training, and matching these incredible canines with their ‘forever companions’.

Jenna-Mae is incredibly excited to meet her furry friend, who will forever watch out for her, accompany her to school, and wherever her heart takes her.

There was initially three lovely sighthounds (greyhound) pups up for consideration, but we are happy to say it looks like Jenna-Mae will be getting a gorgeous young female pup named Isla. Isla is ALSO a rescue from Sighthound Rescue and Lucy from Honey’s Garden always tries her best to save dogs that would otherwise not have a home. Double win!!

 

Isla is a very cuddly dog with a gentle nature but is also a very active and playful pup. Isla is in a wonderful foster home now busy with training and has already completed a very successful puppy training year. Our very smart puppy has now started full-time “hero training” to be a qualified service dog.

 

Part of the process will also be sending down frozen saliva samples from Jenna-Mae so that Isla can get used to the scent of Jenna-Mae’s “highs” & “lows”. We are getting there people! It is becoming so real! Thanks again to each and every single person. We are so thankful, more than words will ever express!

Support this campaign on BackaBuddy: 

https://www.backabuddy.co.za/jenna-mae-van-der-vyver

Alternatively, make a donation via Snapscan: 

https://pos.snapscan.io/qr/Jenna-Mae-Van-Der-Vyver

If the fundraising campaign exceeds its target, the family will use additional funds raised to purchase Freestyle Libre sensor devices, which will be able to read Jenna-Mae’s sugar levels more accurately and less painfully. These devices cost R1000 and last up to 14 days.

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R330 Million.

 

Cableway Guide to summit Table Mountain 365 times in 2022 to build safe haven for children

Cableway Guide to summit Table Mountain 365 times in 2022 to build safe haven for children

Rudy van Dieman (26), a tour guide for Table Mountain Aerial Cableway, began 2022 with an ambitious goal: to achieve 365 summits up Table Mountain, for charity.

The challenge which began on 1 January 2022, and will end on the 31st December 2022, came about as a means to show youngsters the power of a strong work ethic and demonstrate that they can achieve anything they set their hearts and minds to.

“What youngsters in our society need today, is a good role model, to show them that there are opportunities outside of drugs. crime and gangsterism and drugs. I hope my challenge will be a beacon of hope for those in disadvantaged communities” Says Rudy

Rudy, who has worked with several charities since matriculating high school in 2014, is focused this year on uplifting a new organisation, Angels SA, located in his hometown of Mitchells Plain, Cape Town.

With a crowdfunding campaign launched on Backabuddy, Rudy hopes to raise R1 Million, which the organisation can use to purchase a safe house for children.

“In Mitchells Plain, there are only three known orphanages, two are for babies until five years, and after that, children are placed in safe houses for three months then move from home to house until they find families to keep them longer.  With the safe house, we want to create a stable life and environment for children, where they can stay until the age of 18, before entering the job market” – says Rudy

Rudy on Day 3 of his challenge.

 

Since the launch of his campaign Rudy has raised almost R5000 with kind contributions from 17 donors.

Thus far, Rudy has completed 44 climbs up Table Mountain, covering a distance of over 100 km, and has been joined by more than 15 individuals supporting his cause.

Rudy with a group of students inspired by his cause

 

Rudy’s initiative is inspired by his hero, Andrew Patterson, who through his 365 Ubuntu Climbs challenge in 2018,  raised almost R1 Million rand on BackaBuddy, to support Habitat for HumanityOne Heart, and The Sunflower Fund. Read More.

“I watched Andrew climb table mountain every day through the summer sun and winter rain, I could never understand why he would do this. The more I watched him, the more it became clear to me, ‘to focus on today and what you can do right now to make South Africa better’ as Andrew says” – Rudy

Rudy with ‘Mountain Man’, Andrew Patterson in 2018

 

“Rudy first contacted me in 2020 to tell me he wanted to tackle this challenge. Climbing Table Mountain every day for a year is a mammoth undertaking — but once I heard why he wanted to do this, I had absolute faith in him. Rudy is an incredible man with big dreams and an even bigger heart. I’m incredibly proud of him and supporting him with every step he climbs.” – says Andrew

Determined to make a difference

Working full-time, living with epilepsy, and struggling financially, in conjunction with the physical demands of his challenge, has been difficult but no less rewarding says Rudy, who is determined to keep going.

“Just as life is difficult for so many people, this challenge hasn’t been a walk in the park, but I remain positive, and through God’s grace I am finding balance. I am putting one foot in front of the other, concentrating on the important things in life and trying my best to create positive change” – says Rudy

One step at a time, Rudy is determined to reach his goal

 

Support Rudy’s campaign on BackaBuddy:

https://www.backabuddy.co.za/angels-sa-project-365

Alternatively, donate via Snapscan:

https://pos.snapscan.io/qr/AngelsSAProject365

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R290 Million.

TRIGGER WARNING | Single mom and two young daughters fall victim to terrifying pit bull attack

TRIGGER WARNING | Single mom and two young daughters fall victim to terrifying pit bull attack

On 14 December 2021, Marizka De Villiers (26) and her two daughters Megan (5) and Chané (9 months), were brutally attacked by the neighbour’s pit bull on an agricultural plot in Randfontein, Johannesburg.

While looking for their dog which went missing, the neighbours dog broke through his chain, began circling Megan, and eventually attacked her face.

“I was fighting with the pitbull while holding my baby in my arms. I shouted out for help but no one came. I told Megan to lay still and to be quiet so that the pitbull would think that she’s dead” – says Marizka.

Without transport, Marizka walked to the nearest road, carrying both her children in her arms, and flagged down a motorist, who drove them to Mohtlakeng 24hr clinic.

Trying to save Megan’s life, Marizka got bitten on both her arms and on her hand, while holding Baby Chané, who suffered serious bites on her lower leg and limb, exposing the muscle to the left of her groin.

Megan’s injuries to her face and arms were so severe, that her chances of survival were minimal.

In need of serious medical attention, Marizka, Megan, and Chané were soon transferred to Leratong Hospital. Megan’s heart stopped beating for the first time on the way there.

Arriving at Leratong Hospital, which was at full capacity, Megan was declared “dead on arrival” as she lost a lot of blood and wasn’t breathing.

In the ambulance on the way to Baragwanath Hospital, Megan’s heart stopped beating for a second time. Fighting for her life, Megan didn’t give up and she pulled through, against all odds.

“This has by far been the most traumatic experience of my life. I have never been so scared and felt more helpless. It felt like time stood still while waiting to hear if my girls were going to make it” – says Marizka.

Hoping for Healing

After a week in the hospital, and not in need of surgery, Chané was eventually discharged on 21st December 2021.

Since the ordeal, Megan has had surgery on her face to close her wounds, as well as surgery on her lower and upper eyelids. She was finally discharged on Christmas eve, 24th December 2021, after spending 2 weeks in hospital.

The family has since moved to Hillshaven, Westonaria.

“Christmas is supposed to be a time of joy and happiness, but it was a very difficult time for our family. Every time I see our battle wounds, I am reminded of what we have gone through. Our lives changed in an instant”  says Marizka.

Megan on 12 Jan 2022.

 

To assist the family with the reconstruction surgery Megan will need to undergo, as well as the trauma and occupational therapy she will need, Carol Murphy, a good samaritan, who met Marizka at Leratong Hospital, has launched a crowdfunding campaign on BackaBuddy, to appeal to the public for support.

Since the launch of the campaign, over R5000 has been raised, towards the family’s fundraising target of R50 000, with kind contributions from 10 donors both locally and internationally.

Funds raised will be used for the family’s medical expenses and transport, as Marizka is currently unemployed, and doesn’t have medical aid or access to her own vehicle.

“I just want the girls to get the best treatment and surgery they might need and to be together. If this target is reached it will keep my faith in humankind, but most importantly, help the family who desperately needs help” – says Carol

Megan on 7 Feb 2022

“Megan is physically doing well but emotionally she’s struggling with the whole situation. I hope that she will recover fully and that she can get the best medical care” – says Marizka

Support this campaign on BackaBuddy: 

https://www.backabuddy.co.za/mb-de-villiers

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far raised over R300 Million.