Joburgers peddle hopes to expand South African Bone Marrow Registry database

Joburgers peddle hopes to expand South African Bone Marrow Registry database

On the 20th of November 2022, 47 cyclists from Johannesburg, will be taking part in the Virgin Active 947 Ride Joburg. Pedalling for a purpose, the group aims to support the South African Bone Marrow Registry in raising funds for their Patient Assistance Programme. 

To date, the SABMR has helped save the lives of around 600 patients with life-threatening blood disorders by matching them with healthy, unrelated bone marrow donors from South Africa and the rest of the world.

Currently, there are 40 million and counting registered donors worldwide and counting. Ethnicity plays a vital role in finding a donor as you’re most likely to find a donor within your own ethnic grouping. South Africa is a prime and unique example of mixed inherited diversity, making it even more difficult to find a suitable match for a patient in need.

A patient has a 1 in 100 000 chance of finding a suitable donor match. These odds are even further reduced for patients of colour to 1 in 400 000 as there is a lack of donors of colour not only on our local registry but globally.  Hence, encouraging everyone who is eligible to sign up and donate to give patients a second chance at life.

“Bone marrow-related diseases is not a mystery, it is a solvable challenge. There are however many patients in need of stem cell transplants to offer them the best chance of survival. The solution: we must get everyone in the world on a registry to give them the best chance. Starting in South Africa.” – says Dr Charlotte Ingram

As a non-profit public benefit organisation, the SABMR relies heavily on financial donations to cover the costs of donor recruitment which costs around R1500 per swab test kit. 

Each kit needs to be sent to an international laboratory for tissue typing before the results are placed on the SABMR’s database, to which donor registries around the world have access. 

As part of the SABMR’s fundraising efforts, 47 cyclists from South Africa have signed up to provide financial support assistance to families unable to cover the costs of finding a donor.

Cycling a distance of 97km, the champions have raised over R58 000 collectively towards a target of R150 000 by crowdfunding on BackaBuddy, to cover the costs of 50 swab test kits, used to recruit new donors and expand the SABMR database.

Meet a few of the cyclists at the 94.7 Ride Joburg

  • Cycling to support the SABMR for the second time, Reece Duthie from Johannesburg, is taking on the 94.7  in hopes to highlight the importance of donor recruitment. He hopes to raise R1000, with more donors coming on board to congratulate him for his achievement.

“Being able to raise funds for the SABMR is a blessing to me – I am fit and healthy enough to be able to push my body. The role that the SABMR plays in the lives of cancer patients is one that signifies hope and courage. With the awareness and funds that I’ve helped in raising, I hope that the SABMR continues their mission of touching the lives of people who need it the most.” – says Reece

  • Last year, Geoffrey Brink cycled the 94.7 for the first time and raised over R7000 to help expand SABMR’s registry. This year, he hopes to raise an additional R5000 to support the SABMR and their life-saving mission.

“I got roped into riding this event last year and I discovered a biker gang that I never knew existed. Some say it takes courage to stick to the plan, but courage I do not have. Instead I ride this race, a journey if you will, for a cause that has courage and a plan to deliver greatness and joy to many other South Africans, that I cannot.  Come 20 November 2022, I will be joining this biker gang, called the “Fat Tyre Gang” on our journey around the 011 for a great cause and in search of a great time”  –Geoffrey Brink

 

To support one of the SABMR’s 47 cyclists on Backabuddy, make a donation here:

https://www.backabuddy.co.za/champion/groups/Virgin-Active-947-Ride-Joburg-SABMR-2022

*All funds raised will be managed by the SABMR. Donors will also be eligible for a Section 18A tax certificate issued by the organisation.

Become a Bone Marrow donor

According to SABMR, Head of Sustainability and National Operations Kamiel Singh, there are currently  79 000 donors registered on the SABMR’s database to cater to over 59.3 million South Africans.

“Every year, hundreds of South Africans with blood diseases such as leukemia reach the point where their only chance of survival is a bone marrow transplant. For about 30% of patients, a matched donor can be found in their own family; for the other 70%, their only hope is to find a matched unrelated donor identified by the SABMR.” – says Head of Sustainability and National Operations, Kamiel Singh.

You can Register to become a Bone Marrow donor, by clicking here:

https://sabmr.co.za/become-a-donor/

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R360 Million.

3-year-old from Cape Town facing a fast growing cancer diagnosis looks for support

3-year-old from Cape Town facing a fast growing cancer diagnosis looks for support

Luke Bester, a three-year-old boy from Goodwood, Cape Town, was diagnosed with Burkitt’s Lymphoma, fast-growing cancer affecting the immune system in August 2022.

The news devastated his parents Marvin (35) and Ruth(42), and little brother, Joshua (1). Luke now faces a long road to recovery and will need his parents by his side as he undergoes chemotherapy to remedy his condition.

“Since Luke’s diagnosis, we have been in and out of the hospital. We have lost a lot of family time. It has been emotionally draining for us as a family. During the weeks that Luke is receiving treatment, one of us is a single parent to Luke in the hospital while the other is a single parent at home to Joshua.” – says Marvin

To support Luke with his ongoing needs, 3 staff members from Bishops School, where Marvin works as a Biology teacher, and 30 runners from Pinelands Athletic Club, launched a crowdfunding campaign on BackaBuddy.

Taking on the Cape Town Marathon on 15 and 16 October 2022, the runners who have varied experience, championed the 42.2km route and raised R114 000 to support Luke with his treatments, and help the Bester family with their living and transport expenses.

Ray van der Scholtz, Lee-ann Harris, Melany du Plessis, Henry du Plessis and Delyse Rist.

The campaign, which is still accepting donations due to Luke’s ongoing needs, has thus far received 106 donations towards the fundraising target of R150 000.

Alison Smith

We have been overwhelmed by the support shown by our family, friends and colleagues. The initiative was set up by our dear running friend (Alison Smith). It has been extremely heartwarming to experience the love that they have shown. This means so much to us. We will forever be in the debt of those who have carried us thus far.” – says Marvin

 

Support Luke as he battles cancer on BackaBuddy:

https://www.backabuddy.co.za/luke-bester

Alternatively, donate Via Snapscan

https://pos.snapscan.io/qr/LukeBester 

 

 

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R360 Million.

 

New gaming app aims to teach school children about the importance of early cancer detection

New gaming app aims to teach school children about the importance of early cancer detection

Torsten Koehler (57), a testicular cancer survivor and author from Cape Town, founded non-profit organisation, Love Your Nuts in 2014, to create awareness around the ‘shy killer’, that affects 1 in 250 men.

Pictured above: Torsten Koehler, founder of Love Your Nuts.

Torsten was confronted with cancer in 1995, with no internet access, no support groups on social media and limited information, which made an already difficult journey even more isolating.

Torsten thankfully survived his cancer diagnosis due to early detection, and made it his mission to teach his sex education students in Namibia about cancer, as testicular cancer commonly affects men between the ages of 15-45.

“Men in general don’t talk about their feelings or their health, and for young men this is even more true. Young men often feel that they need to stand their ground, show they are strong and buy into the ‘men don’t cry’ fallacy. What I tried to do with my classes is to break the stigma around this taboo topic and shatter the shyness around  testicular cancer”

Pictured above: Love Your Nuts talk at PechaKucha in Cape Town.

“My book ‘Love Your Nuts – Testicular Cancer touched my Life’ was released in 2004. Years later a past student who was 16 contacted me and told me that he had testicular cancer and that I saved his life. This inspired me to launch my non-profit a decade later” – says Torsten

For the past 8 years, Love Your Nuts has toured schools with their Cancer Smart School Programme and has reached over 34 700 individuals face-to-face at various events with their message.

Pictured above: Love Your Nuts challenges men to run in swimwear to raise awareness. This group ran the Cape Town Marathon.

“Knowledge and early detection are the best weapons against cancer. If we can educate our children early in their lives, the survival rate will be much higher. Changing the behaviour of young people by teaching them to look after their health will lead to a healthier next generation who will uplift their communities.” – says Torsten

Crowdfunding on BackaBuddy

To transform their school program, which teaches children about various forms of cancer, into an educational gaming app, Love Your Nuts has partnered with The Centre for Community Technologies at Nelson Mandela University to develop an app prototype. 

 

In need of R400 000 to begin phase one of the project, Love Your Nuts has launched a crowdfunding campaign on BackaBuddy, in hopes to reach remote areas in South Africa and around the globe, where information and medical resources lack the most. 

The end goal, Torsten says, is to save as many young lives as possible.

Pictured above: Love Your Nuts educating and raising awareness in rural South Africa.

“Funds raised will be used to develop a functional prototype that can help us secure support from larger investors, get legal advice to protect the rights of the children who will be using our app, consult with medical experts to revise the cancer information and to keep it up to date and cover the cost of testing and further development” –  says Torsten

With initial support, 14 donors have already contributed R2400 towards the crowdfunding campaign, which is expected to have a tremendous impact. 

Torsten speaks about the importance of early detection:

With today’s technology, we can educate individuals about the significance of early detection of cancer:

  • It’s less pain and trauma for the patient. 
  • It’s less of a financial burden for the patient (the majority of South Africans don’t have medical aid), 
  • Bed occupancy in hospitals is shorter, which cuts costs for the government. 
  • Treatment is shorter and a cost-saver for medical aid and government 
  • If cancer is detected very early, in some cases, no treatment (chemo, etc.) is needed”

 

Support this campaign on BackaBuddy:

https://www.backabuddy.co.za/love-your-nuts

Alternatively, donate via Snapscan:

https://pos.snapscan.io/qr/LoveYourNutsGamingApp

All Donors are eligible for a Section 18A tax certificate issued by Love Your Nuts.

 

Connect with Love your nuts

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Connect with Love Your Nuts

The goal of Love Your Nuts is to raise awareness of (testicular) cancer by educating communities about the rarely spoken about cancer that often remains undetected in young adults due to our diverse society in South Africa, where cultural taboos, stigmas and a lack of knowledge about the subject is widespread.

We support men diagnosed with testicular cancer emotionally. It is often easier to share thoughts and fears with a survivor than a family member or friend. Building a network of survivors nationwide/worldwide that support patients is an ongoing process. If you are a survivor and like to help, please get in touch.

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R360 Million.

 

FEEL GOOD | Biker Friends to Ride to Lesotho on Delivery Bikes to give man a professional prosthetic leg

FEEL GOOD | Biker Friends to Ride to Lesotho on Delivery Bikes to give man a professional prosthetic leg

Andrew Jansen van Vuuren (39) an avid biker and boilermaker from Kempton Park, Johannnesburg was involved in a traumatic road accident in January 2022, which resulted in the amputation of his right leg from the knee down. 

Pictured above: Andrew with his daughter Mekaila and his wife’s grandson, Baylin.

Despite undergoing 2 operations and facing many obstacles along the way, Andrew, a father of two, returned to work a month after his accident as he is the main breadwinner for his family. His fiance, Maria sadly lost her job, like so many South Africans during the Covid-19 pandemic.

To make ends meet Andrew and Maria run a weekend fast food business which operates out of their tuckshop at the motocross track. Always looking out for others, even in difficult times, the couple delivers leftover meals to those in need and has even given a homeless man a job and a place to sleep.

Giving Andrew a leg up

Unable to afford the cost of a prosthetic leg, Andrew used his mechanical skills to construct his own substitute leg that has allowed him to continue working, drive his car, quad bike and even ride his bicycle. 

While his impressive innovation has made life a little easier, Andrew suffers severe pain on his stump and experiences strain on his joints.

Inspired by Andrew’s amazingly positive attitude to life, his remarkable will to succeed, his endless kindness to others and his selfless acts, a group of fellow bikers have decided to take on a fun charity ride to Lesotho this November to the Roof of Africa hard enduro race to give Andrew a leg up.

Pictured above: From the left Kyle, Grant, Sharky, Cwade, Andrew, Gavin, Louis, Dylan at the MX track in Kempton Park where Andrew runs his fast food business. 

Travelling from Johannesburg to Lesotho, to the Roof of Africa on delivery bikes, the friends hope to raise R200 000 on crowdfunding platform, BackaBuddy, to purchase a well-deserved prosthetic leg for Andrew.

The gentlemen begin their 1500km journey on 8 November 2022 and will arrive at their destination on 13 November 2022.

Since the launch of the campaign, almost R40 000 has been raised through kind contributions from 19 donors.

““Andrew has never let his situation get him down and always makes the best of every situation. For that reason we are taking the opportunity to turn our adventure into something meaningful and make Andrew’s life a little easier.” – says Gavin Naude, the main driver of the campaign.

Support Andrew on BackaBuddy:

https://www.backabuddy.co.za/andrew-jansen-van-vuuren

Alternatively, donate via Snapscan:

https://pos.snapscan.io/qr/AndrewJansenvanVuuren

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R360 Million.

AHOY MATEY, THE GREAT OPTIMIST RACE IS BACK!

AHOY MATEY, THE GREAT OPTIMIST RACE IS BACK!

The Great Optimist Race in conjunction with Boatica is back!

Following a two-year break as a result of the global pandemic, the Little Optimist Trust is delighted to announce that the event will once again take place at Cape Town’s annual Boat Show, Boatica, on Saturday the 29th of October.

Pictured above: Greg Bertish

This year will see 15 hand-picked elite little optimist dinghies race for glory. 

They will be sailed by celebrities, captains of industry and medical survivors Cape Talk’s Pippa Hudson and Adventurer Riaan Manser will be leading the celebrities, with two time winner and shark encounter survivor Caleb Swanepoel back in his Two Oceans Marine Boat.

Other contenders include double lung transplant survivor Tanya Bothma , stroke survivor Hilton Swanson and CEO Gareth Leck. Others who will be returning to the start line include big wave surfer Matt Bromley.

Little Optimist Trust Founder Greg Bertish will again be a favourite and says, “This year is going to be fast and furious and all in the name of raising funds for the Little Optimist trust and other charities“.

Picture: Grant Scholtz

Not only will the race serve as one of the highlights on Boatica’s calendar, but funds raised will be poured back into the ongoing sailing therapy offered by the Little Optimist Trust’s sailing academy at Battery Park. 

The academy teaches sailing skills to disadvantaged, sick and marginalised children, giving them much-needed confidence and joy.

Members of the public are invited to bring family and friends, young and old, to the Academy’s sailing clinic at Boatica. They will be offering a sailing experience and lessons on 28, 29 and 30 October, in conjunction with South African Sailing.

To sponsor or back a boat for the race for charity donate here:

www.backabuddy.co.za/charity/profile/tgor2022

Combined the sailing champions have raised R65 000 towards their collective fundraising target of R380 000 on BackaBuddy with the support of 59 donors.

Picture: The Little Optimist

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R360 Million.

 

Homeless and addiction support charity in Cape Town faces major funding gap

Homeless and addiction support charity in Cape Town faces major funding gap

Souper Troopers, a Cape Town-based homeless advocacy and support non-profit organisation, was able to create 25 jobs this year for homeless individuals, many of whom have substance abuse issues.

This was made possible with much-needed funding from the City of Cape Town through Khulisa Social Services, which has been put on hold due to unforeseen internal circumstances at the City.

“Our ‘Souper Squad’ has been hard at work, over the past 10 months, beautifying public spaces in under-resourced communities by planting, painting, growing, clearing, decorating,” says Kerry Hoffman, Executive Director of Souper Troopers.  “While working individually and as a group, the workers have also focused on personal development, recovery from addiction, life skills and creative pursuits, with the help of Souper Troopers’ dynamic fieldwork team.” 

Image: Souper Troopers

To keep the program, which has been a roaring success, alive Souper Troopers has launched a crowdfunding campaign on BackaBuddy to fill their funding gap until they receive their renewal funding later this year.

“Without support, I fear all the progress our workers have made will be undone, their steps to find accommodation will be derailed, they will struggle to stay off of their substances they were dependent upon and reconciliation with their families will be halted,” says Hoffman.

Image: Souper Troopers

The program costs about R100 000pm to run smoothly over the anticipated two-month gap in funding. Thus far almost R50 000 has been raised (through kind contributions on BackaBuddy), which will be used to cover the psychosocial developmental services needed to help the workers continue on their paths towards independence and their wages.

The program has impacted so many lives:

  • 25 of the workers have opened bank accounts and have ID documents 
  • 25 of the workers are able to send money home to their families every month.
  • 25 of the workers have achieved the goals they have set for themself.
  • 22 of the workers are now clean and are no longer using the substances they were addicted to.
  • 20 of the workers no longer live on the streets of Cape Town.
  • 8 of the workers have managed to save for their future. 

 

Image: Souper Troopers

In their own words:

“Before joining the Souper Squad, I lived on the streets, and my life was about crime and drugs. I spent my life in and out of jail. I was tired of that life. Working for Souper Troopers has changed my life: I don’t do drugs anymore, I don’t live on the streets, and I think positive thoughts. I am scared that I will fall, go to jail, do the crime again, and that’s the life I don’t want to go back to again.” Jonathan

 

“Souper Troopers helped me when I was retrenched. I was in a bad state, stressed out. Being part of the Souper Squad has helped me become more open; it has been a restoration for me because I have managed to feel alive again, be positive, and look forward to bigger and better things. My biggest fear is returning to the streets again and not having someplace to call home.” Christopher

 

“At Souper Troopers, these people are not like people who only come to work; they are there for everything for help, in every department. The way they use their words, the word ‘family’. This is beautiful. For me, I can say I am a success. Not from my old life. I’m talking about the period from when I started here until now. That period is the success.” Kaya

Support this campaign on BackaBuddy:

https://www.backabuddy.co.za/help-our-souper-squad-thrive

Alternatively, donate via Snapscan

https://pos.snapscan.io/qr/SouperTroopers

*All donors are eligible for a Section 18a tax certificate issued by the Souper Troopers

Create a crowdfunding campaign

South Africa’s leading crowdfunding platform, BackaBuddy has supported more than 10 000+ individuals and charities in setting up fundraising campaigns for medical fees, tuition and various causes in South Africa. The platform has thus far risen over R360 Million.