Every year on the last day of February, the world observes Rare Disease Day, a global initiative aimed at raising awareness about rare diseases and the challenges faced by those affected. In South Africa, this day serves as a poignant reminder of the importance of early diagnosis, research, and community support for individuals battling rare conditions.
Supporting the Community
With BackaBuddy being a platform to raise and support people living or battling rare diseases, many crowdfunding campaigns are actively supporting individuals facing rare diseases. Here are some campaigns that are currently raising funds:
Zeeya’s Battle Against Rare Disease
16-month-old Zeeya Moodley from Port Elizabeth is bravely battling an aggressive form of Meningococcal disease. Despite his young age, Zeeya shows incredible strength as he fights this rare, life-threatening condition. His community has come together, offering support and donations to help his family through this difficult time. The funds raised are being used for his medical treatments, hospital stays, and ongoing care.
Zeeya’s journey is a testament to resilience, and with your help, he can continue to fight.
Read his story here: Port Elizabeth’s 16-Month-Old Warrior Zeeya Fights Rare Disease with Community Support
Support his campaign: https://www.backabuddy.co.za/campaign/zeeya-moodley
Joshua’s Fight Against Cancer
7-year-old Joshua Louwrens’ battle with an aggressive form of cancer, Non-Hodgkin Lymphoma (NHL), has united many in the community to provide financial assistance for his treatment. The funds raised will go towards covering the cost of his chemotherapy, medical bills, and other essential treatments required for his recovery.
Read his story here: Joshua’s Angels: A Community’s Love Gives 7-Year-Old a Fighting Chance
Support his campaign: https://www.backabuddy.co.za/campaign/josuas-lymphoma-fund
Kyle’s Fight Against a Rare Genetic Condition
Kyle Skidmore’s (29) struggle with a rare genetic disorder has prompted his grandparents to start a crowdfunding campaign for his treatment. The funds raised will help cover the costs of specialized treatment, therapy, and medical interventions that are essential for improving Kyle’s health.
Read his story: Grandparents crowdfund to give grandson (29) suffering from a rare genetic condition a new lease on life.
Support his campaign: https://www.backabuddy.co.za/campaign/kyle-skidmore
These campaigns not only provide financial relief but also foster a sense of community and shared responsibility.
Where to Seek Help in South Africa
If you or someone you know are dealing with a rare disease, here’s where you can find help and resources through a number of organizations dedicated to rare diseases:
- Rare Diseases South Africa (RDSA): This organization provides support, advocacy, and information for individuals affected by rare diseases. They work to raise awareness, improve access to healthcare, and provide guidance on navigating the complexities of rare disease diagnoses and treatments. (Visit: www.rarediseases.co.za)
- The South African Rare Disease Society (SARDS): Another key resource in South Africa, SARDS focuses on advocacy and community support for patients with rare conditions. They work on policies to improve care and increase research for rare diseases in South Africa. (Visit: www.sards.org.za)
- The Department of Health: The South African government offers various resources through the Department of Health, which is involved in the coordination of healthcare services for rare disease patients. (Visit: www.health.gov.za)
- The South African Human Genetics Society (SAHGS): This organization provides resources and support for genetic conditions, which are often at the heart of many rare diseases. They offer guidance on genetic testing and counseling. (Visit: www.sahgs.org.za)
By raising awareness, supporting ongoing research, and contributing to crowdfunding efforts, we can make a significant difference in the lives of those affected. Start a campaign on BackaBuddy to raise funds for your medical needs and help others facing similar challenges get the support they need.